goals tbh

#disability #ChronicIllness #autoimmune

Treated but still sick? You’re not broken—and it’s not “all in your head.” For many, the infection is only the spark. This is one of the core ideas in my book Silent Spark: Chronic illness is not only about what started the fire, but what keeps it burning.
Get your copy here: https://a.co/d/03GDXLiQ

#chronicillness #moldillness #lymedisease #autoimmune #whyamistillsick

#Women Are In An #Autoimmune Crisis — What Are We Going -
https://kensbookinfo.blogspot.com/p/ireland.html#DonegalDaily

#Delhi Court Convicts Man for Sexually Assaulting Four-Year-Old, -
https://kensbookinfo.blogspot.com/p/etc.html#India

#Iran's resilience during war debunked all Western propaganda -
https://kensbookinfo.blogspot.com/p/etc-continents.html#Arab

Get a $200 Cash Back Bonus on #Holiday Gift Buying -
https://kensbookinfo.blogspot.com/p/politics.html#7

#Oxford company ranked number one in #FoodTech 500 Awards -
https://kensbookinfo.blogspot.com/p/us-cities.html#28a

View all the Continents news https://kensbookinfo.blogspot.com/2026/03/latest-news-from-continents.html

Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

Bye..

#actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

🧬 Jediná léčba odstranila tři autoimunitní choroby! TLDR: Modifikovaná CAR T terapie dokázala u pacientky „restartovat“ imunitu a eliminovat tři různé autoimunity. 🧪

Naše imunita je skvělá věc – ale víte, co skvělá věc není? Taky naše imunita! Autoimunitní nemoci postihují 8–10 % lidí a někdy si tělo dá hattrick. Přesně to se stalo 47leté pacientce v Německu… 🧬 🗣️ „Co jí vlastně bylo?“ Trpěla třemi vážnými chorobami: hemolytickou anémií (ničení červených krvinek), trombocytopenií (úbytek destiček) a antifosfolipidovým syndromem (riziko sraženin).

Dostala se až do fáze každodenních transfuzí. 🩸 🗣️ „Jak se to robí?“ Doktoři vzali její vlastní imunitní buňky, geneticky je upravili a poslali zpět do těla. Tentokrát neútočily na nádory, ale na B-buňky produkující škodlivé protilátky (cíl CD19). Výsledkem byl „reset imunity“! 🔧 🗣️ „Fungovalo to?“ Jes – během týdnů se krevní hodnoty zlepšily a všechny tři nemoci přešly do remise, která trvá přes rok.

Nově vzniklé B-buňky už neútočily na vlastní tělo. 🔄 🗣️ „Tak proč to nemáme všichni?“ CAR T je drahá, složitá a riziková. Jde zatím o řešení pro nejtěžší případy, ne běžnou léčbu. Výzkum teď míří k jednodušším variantám bez genetických zásahů. 💉

Reset imunity tak zatím není standard – ale ukazuje, že některé „bugy“ našeho těla možná jednou půjdou opravdu přepsat! 🧠

#autoimmune #zdravi

https://www.facebook.com/reel/1451728112916215/

TW: medical chat about neuro stuff : carpal tunnel

I’ve developed persistent pins and needles in my right hand/fingers. It’s around my worst rheumatoid arthritis joints (right wrist/thumb). It isn’t inflamed or swollen and none of my regular at home treatments are touching it. It’s painful.

Ugh. 😑

I have had an EMG done bilaterally showing neuro issues centrally and peripherally. I’ve had carpal tunnel on both sides for the last 15ish years, so it’s not new to me, but this feels like it’s come out of nowhere.

Anyone else deal with #autoimmune issues and flare ups of carpal tunnel?

I’m usually great at knowing my own body and being able to treat anything going on but this… yikes. I feel helpless.