| Pronouns | They / them |
| #nobodylikesatory | Left of left of center |
| Interests | #climatecrisis #cats #myalgicencephalomyelitis |
| Location | Housebound since 2016 ME since 2001 |
can't stop shaking and keep getting hot spells with it, all from "overdoing it" since Xmas in the sense of using brain too much
I hate this damn illness!
Not sure whether extra L-carnitine would help. Unsuprinsgly, extra insomnia too.
General info: if you see a post tagged #NEISvoid, this means No End In Sight void. It means the post is from someone with a chronic illness or disability that isn't going away. They're venting or seeking to connect with other people who also exist in this void.
Avoid responding to these posts with unsollicited advice or generic 'get well soon' messages - I know you mean well, but we know more about our conditions than you and the tag tells you that we're not gonna get well soon.
it's nice feeling clean for a change but omg muscle pain after... probably will be worse tomorrow #postexertionalmalaise #MyalgicE #pwme
i wanted to dye my hair but glad I chose not to. Probably wouldn't have managed to finish it anyway. Would be nice if I could get it done in the next week after putting it off for months. Unlikely to manage tho...
#Anxiety levels worse & extra depressed so thinking of upping meds. Waking up early despite sleep meds🙁
One finger joint is horribly painful but not stabbing or nerve pain. I was thinking arthritis? but I have been through this before only to find out it was #myalgicencephalomyelitis (ME) pain.
Thankfully the last 2 people came over to quote for house stuff b4 Xmas so much stress over.
Both tradespeople were cat people with *laser tape measures* - our super-friendly (needy) cat loved it!
Have not been feeling good these past two weeks (even more shit than normal as #housebound person + severe ME).
Made AND ate a #vegan 🌱 #mugcake -needed wheelchair just to get to next room... 💪 but omg amazing!
#recipe https://www.allrecipes.com/recipe/241038/microwave-chocolate-mug-cake/
¼ cup flour
¼ cup sugar
2 tspn cocoa powder
⅛ tspn baking soda
⅛ tspn salt
3 tblsp vegan milk eg oat
2 tblsp canola oil
1 tblsp water
¼ tspn vanilla extract
*Directions*
Mix dried stuff
Add wet stuff and mix
Microwave 1min 20 (gooey!) to 1min 45
Can we have community lists added for
Disability,
Human rights,
ME/CFS
Mental disorders please?
Thank you
@carbontwelve
Another day, another crap sleep of disturbed dreams and another spell lying on the carpet and wanting to stay there.
This time I actually remembered HOW I ended up lying on the carpet (thanks amnesia!)...
I had asked my other half for a back click, and by the time I had rolled over onto my back after, all energy had vanished.
Times like these suck. Have rested all day except for a phone call. Feel worse.
Got nausea again.
Dr Ro Smith
Naomi Lawson Jacobs