20 Followers
47 Following
32 Posts
LGBT+ 🏳️‍🌈🌱♿️😺 #severeME #pwME #myalgicE #vegan #wheelie #spoonie #disabled #dissociative #blacklivesmatter #nobodylikesatory #climatecrisis
PronounsThey / them
#nobodylikesatoryLeft of left of center
Interests#climatecrisis #cats #myalgicencephalomyelitis
LocationHousebound since 2016 ME since 2001
@tomkindlon @mecfs good to hear, staff are often so inflexible that they cannot see beyond a policy to the purpose of the policy... which was to keep her alive!
@nisreen probably men telling you this... men often think they have the right to tell you when to smile and how... cringey and patronising

can't stop shaking and keep getting hot spells with it, all from "overdoing it" since Xmas in the sense of using brain too much

I hate this damn illness!

Not sure whether extra L-carnitine would help. Unsuprinsgly, extra insomnia too.

#pwme

just finished setting up a filter to hide a bunch of the religious posts... ready for the holiday season now #atheist
@bodyetal DID is always ALWAYS traumagenic. There is no other kind. DID is the name of a diagnosis- if people are against diagnosis then they shouldn't co-opt the name of one. Stop spreading misinformation about stuff you don't have a clue about.
@McCullohMD Tooot (3 o's in the middle) - less crashes than metatext
So #elonmusk claims he's stepping down from ceo if #birdsite but expects to stay in charge of... well, basically everything. Probably while undermining the CEO he chooses... I guess this is more smoke and mirrors aimed at improving Tesla stock, which divided as a result of his twitter involvement.
I have never understood how such a ridiculous egomaniac could run any profit making businesses in the first place.

General info: if you see a post tagged #NEISvoid, this means No End In Sight void. It means the post is from someone with a chronic illness or disability that isn't going away. They're venting or seeking to connect with other people who also exist in this void.

Avoid responding to these posts with unsollicited advice or generic 'get well soon' messages - I know you mean well, but we know more about our conditions than you and the tag tells you that we're not gonna get well soon.

it's nice feeling clean for a change but omg muscle pain after... probably will be worse tomorrow #postexertionalmalaise #MyalgicE #pwme

i wanted to dye my hair but glad I chose not to. Probably wouldn't have managed to finish it anyway. Would be nice if I could get it done in the next week after putting it off for months. Unlikely to manage tho...

Just a general notice that I do not accept medical or living-with-disability advice from non-disabled know-it-alls who either have no idea or don’t care that they’re speaking from both privilege and ignorance. This handy block button is right here. (Fellow disabled/ND people exempted from this notice - unless you too are trying to get me to try something I started by trying 15 years ago) (and here I thought it would be better here than on Twitter)
*sighs in disabled*