DisabledPumpkin

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@pumpkindisabled on Twitter. Long Covid since early 2020, diagnosed with ME/CFS now. Former programmer for 20 years. Sometimes bedbound, currently able to move to the living room each day and refill my own water glass (yay!). @DisabledPumpkin as well
AvatarA blue-green succulent native to my area, with pale pink edges. Shaped like a small rose and growing on a light-colored rock outcrop. (scientific name Sedum laxum)

From Yale Medicine:

"Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses"

https://www.yalemedicine.org/news/long-covid-mecfs-and-the-importance-of-studying-infection-associated-illnesses

"Research on Long COVID may also shine light on the underlying causes of myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #Dysautonomia #Neuropathy #OrthostaticIntolerance

Long COVID, ME/CFS and the Importance of Studying Infection-Associated Illnesses

Research on Long COVID may also shine light on the underlying causes of myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS.

Yale Medicine

Four years after COVID-19 was declared a global pandemic, Yahoo Canada spoke with several people still living with LongCovid - read their stories below

https://ca.style.yahoo.com/living-with-long-covid-heres-how-my-life-has-dramatically-changed-after-covid-19-gave-me-pots-disorder-190118198.html

Living with long COVID: Here's how my life has dramatically changed after COVID-19 gave me POTS disorder

Since getting POTS, here's how I've learned to manage my life and stay hopeful while battling a chronic illness.

Yahoo Style

The Quebec Health minister looked a tad freaked today announcing 10 confirmed cases of measles in the province with at least 3 determined to be community spread

1 case of measles can exponentially spread, R012-15, to 216 cases within 12 days - with each new case compounding

Quebec MMR immunization is 80% - far below the 95% considered necessary for community protection

Clusterfuck with Covid

1 confirmed measles case in BC

#Covid #Covid19 #Measles #CDNpoli #QUEpoli #BCpoli

This is a pretty incredible piece of work impacting #LongCovid future treatments that I just made my neuroscientist wife explain to me. Potentially a big finding and here's a good readable summary:

https://newsroom.ucla.edu/releases/viral-protein-fragments-behind-serious-covid-19-outcomes

The virus persists but so do scientists <3

Viral protein fragments may unlock mystery behind serious COVID-19 outcomes

‘Zombie’ virus fragments continue to cause inflammation after the virus is destroyed

UCLA

Bernie Sanders: "Each reinfection increases the risk of developing Long COVID. If you are under the impression that once you've gotten COVID you never need to worry about it again, you are mistaken."

#CovidIsNotOver #CovidIsAirborne #KeepMasksInHealthCare #maskup #WearAMask #VaccinesPlus #covid19 #covid #LongCovid #pwLC @novid

Just published at Science

A LongCovid underpinning & potential biomarker

Impressive multicenter, prospective study demonstrates persistent complement activation, pro-clotting + inflammation; severity of symptoms associated with virus reactivation (CMV, EBV)

https://www.science.org/doi/10.1126/science.adg7942

Any experts on the #canadian #disability system?
It looks likely that I will be looking at #LTD and the death of my audio career. I need some advice and a rundown of what it's *actually* like to go through.

Bonus if you have navigated the system with #cfs or #longcovid, as that's what's got me.

#help

Sound familiar? December 29, 2023- 🇮🇹 “Emergency room in haywire from Turin to Rome: it's an emergency between flu, Covid and holidays. “Days of waiting for a bed and ambulances queuing” - https://www.ilfattoquotidiano.it/2023/12/29/pronto-soccorso-in-tilt-torino-a-roma-influenza-covid-ferie-giorni-attesa-posto-letto/7396358/
Pronto soccorso in tilt da Torino a Roma: è emergenza tra influenza, Covid e ferie

È emergenza tra influenza, Covid e ferie: ecco cosa sta accadendo

Il Fatto Quotidiano

Want to learn about the latest grim research findings on #LongCovid?

An excellent video with Akiko Iwasaki (Sterling Professor of Immunobiology at Yale), Ziyad Al-Aly (Director of the Clinical Epidemiology Center at the VA St. Louis Health Care System), and Michael Peluso (Assistant Professor, Medicine at UCSF), moderated by Bob Wachter (Chair of the Department of Medicine, UCSF)

https://www.youtube.com/watch?v=rMt6ZV-hHSE

#CovidIsNotOver #MaskUp

Update on Long Covid

YouTube
Predators targeting people with Long Covid with unproven stem cell treatments, charging up to $25,000. Nearly half of the 60 clinics identified are operating in the United States https://cell.com/stem-cell-reports/fulltext/S2213-6711(23)00374-0