Well, this week has so far involved a seizure from Jarrah (he missed a dose of his medication, which doesn't bode well for reducing it over the next month, but we'll cross that bridge when we come to it), a night of digestive issues for me, and a call from Dad late this afternoon, who thankfully didn't need the hospital this time (probably just dehydrated and low blood sugar; I went over and made him a cuppa and a sandwich).

It's Tuesday. Wtf. I'm putting in an order for less drama for the rest of the week please.

However! Good things are happening all the same:

+ Kid4 has been playing Diablo 2 and loving it and keeps asking me stuff and last night we had a chat about some things (waypoints and identifying items) and he said, 'It's so great to be finally playing a game that I can talk to you about!' (because I play few games, but Diablo 2 is one of my very faves)

+ we have a hot day forecast tomorrow but after that, hopefully it'll be into cooler weather

+ the kitchen stayed clean until the weekend! I say 'stayed clean' – I mean, I kept it clean. Obviously it's a bit messy now given the last couple of days but I feel like it's not overwhelming. Also, the fam is helping with this – yay for a virtuous circle

+ fit in a good trumpet practice before Dad called. I missed so many days last week and I really noticed the difference in my lesson

+ I ordered a record for my birthday soon and it arrived and I'm so delighted 🥰

#GoodThings #busy #family #CareWork #trumpet #housework #music #gaming #jarrah

In June, the conference “Knowing and Doing Care” will bring together different approaches and ways of understanding and examining care practices in the past and present, in the East and West. A special focus will be placed on transcultural interconnections between the past and present, between East and West. If you are interested in the topic, you can submit your own contributions until March 17. All information: https://www.uni-kiel.de/en/cluster-roots/details/news/konferenz-knowing-and-doing-care-comparing-care-roots-of-care

#CallForPapers #conference #Care #CareWork #CarePractices #PastAndPresent

Wir schreiben viel über das Gehen. Aber selten darüber, dass wir manchmal nicht gehen und darüber, dass der Körper auch eine Geschichte trägt: Entzündung, Angst, Schmerz, Überforderung. Dass Autonomie auch heißt, nicht verfügbar sein zu dürfen.

Das Draußen ist längst kein neutraler Raum mehr. Erwartungen: an Selbstwirksamkeit, an Transformation. Wer geht, arbeitet an sich. Wer nicht geht, bleibt zurück.

Das Ferale ist nicht immer der Trail, sondern auch die Weigerung, den eigenen Körper verfügbar zu machen.

https://ferals.eu/wenn-die-berge-nicht-rufen

#Hiking #Wandern #Outdoor #MYOG #FeralePraxis #Körper #SpoonieHiking #RestIsResistance #CareWork #PerformanceCulture #OutdoorCulture #Zugang #ChronicIllness

Wenn die Berge nicht rufen

Über Körper, die nicht verfügbar sind.

Ferals

This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

Bis der Spray offiziell zugelassen wird, raten Fachleute: Körperkontakt, Nähe, Zuwendung – das aktiviert das natürliche Oxytocin. „Knuddeln auf Rezept“ hilft Mutter und Baby. #CareWork #Empathie 7/
He kneels at her feet – Fokkina McDonnell

He kneels at her feet . . Fokkina McDonnell’s poems have been widely anthologised and published online and in print. She has three collections and a pamphlet. Fokkina received a Northern Writers’ A…

It talked about the changing relationship you'll have with your parent/s and that's definitely something I struggle with, but also trying not to borrow the worry about my own older age. The exhaustion I sometimes feel while juggling work and children and being a supportive partner and also caring or advocating for my parents... I don't want my kids to feel that crushing overwhelm. I want to be as healthy and active as I can for myself in older age but also for their sakes.

And I fully admit that I'm looking at this from the perspective of who I'm currently parenting – when this happens* they'll be adults and have their own lives and responsibilities and decisions to make, not teens where they still need me to a greater or lesser degree.

Anyway, the point is that right now, my eighties looks scary but I'm doing what I can to make them less so, while at the same time recognising that if I do get there, it's a privilege

*assuming things go to plan with my health as I age, which they obviously may not

#parenting #caring #CareWork #ageing

Good idea: subsidize care work

https://www.bbc.com/news/articles/c5y9ez3kzrdo

In a village in the central Indian state of Madhya Pradesh, a woman receives a small but steady sum each month - not wages, for she has no formal job, but an unconditional cash transfer from the government.

Premila Bhalavi says the money covers medicines, vegetables and her son's school fees. The sum, 1,500 rupees ($16: £12), may be small, but its effect - predictable income, a sense of control and a taste of independence - is anything but.

#carework , #india , #universalbasicincome

India cash transfers for women: Paying for unpaid household work

Some 118 million women in 12 Indian states receive unconditional cash transfers, one of the world’s largest experiments.

Post 2/3 Key findings: 👉🏼 Many low-income groups already live within ecological limits – often involuntarily 👉🏼Care work and time scarcity strongly constrain sufficiency 👉🏼“sufficiency” is unfamiliar, but everyday values (e.g. health) are powerful entry points #Inequality #CareWork #ClimateJustice
TRAJEKTORIA Fekonomickej SLEPOTY
Kam smeruje a aké budú dôsledky?

Komodifikácia ŽIVOTA
Trh sa snaží postupne „vtiahnuť“ aj starostlivosť a vzťahy do ekonomiky (platené opatrovateľské služby, komerčné aplikácie na zoznamovanie, platené babysitting či „care economy“). Prirodzene nepeňažné, sa mení na službu, ktorú si kupujeme.

TLAK na RODiny a KRÍZA starostlivosti
Starnutie populácie a menší počet detí znamená, že neplatená starostlivosť je čoraz náročnejšia. Rodiny sú preťažené, ženy často nesú dvojité bremeno (platená práca + neplatená starostlivosť). Rozpad komunitných väzieb

Ak sa LoveWork (vzťahy, susedská pomoc, dobrovoľníctvo) neoceňuje, ľudia ho postupne prestávajú robiť! Výsledok: osamelosť, slabšie komunity, menšia dôvera v spoločnosti.

⚠️ DôSLEDKY
Sociálna kríza: Nedostatok starostlivosti o deti a seniorov, vyčerpanie rodín, rastúca osamelosť.

Ekonomická slepota: HDP môže rásť, ale spoločnosť bude slabnúť, lebo neplatená práca sa nepočíta.

Psychologické následky: Vyhorenie, pocit nedocenenia, strata zmyslu – keď základné piliere života nie sú uznané.

🌱 ALTERNATÍVA
Revalorizácia care work: Zavedenie politík, ktoré uznávajú hodnotu starostlivosti (napr. platené rodičovstvo, podpora opatrovateľov).

Komunitné modely: Posilňovanie susedských sietí, dobrovoľníctva, spoločných projektov.

Nové ukazovatele prosperity: Namiesto HDP merať aj kvalitu vzťahov, starostlivosť, wellbeing.

Smerujeme k spoločnosti, kde bude všetko „na predaj“ – aj starostlivosť a vzťahy – ale zároveň bude chýbať to, čo sa kúpiť nedá: dôvera, láska, prirodzená solidarita.
#eco #anthropocene #symbiocene #future #alternative #vision #mind #eurodiversity #neurodiversity #carework #lovework #DisCO
https://sita.sk/klima/zachranit-planetu-inak-preco-prave-neurodiverzni-ludia-mozu-byt-poslednou-nadejou-prirody/
Zachrániť planétu inak: Prečo práve neurodiverzní ľudia môžu byť poslednou nádejou prírody

Tmavnúce oceány, miznúce druhy, výkyvy počasia. Naša planéta volá o pomoc — a možno nečakane sa ukazuje, že jednou z odpovedí na túto výzvu by mohli byť práve ľudia, ktorí premýšľajú a vnímajú svet trochu inak. Neurodiverzní ľudia.

SITA Slovenská tlačová agentúra