Mountain Trifecta Alliance
ππ²πͺ ππΈπ»πͺ (she/her)I love Dr. Linda Bluestein's #BendyBodies podcast, and this ep is a must see as her guest, Dr. Julie Robinson-Smith gives a #jaw anatomy lesson on camera. For all my #hypermobility peeps out there, you're about to have your minds (and jaws) blown.
https://www.youtube.com/watch?v=EGXZaUacqDw
76. Orofacial Pain with Robinson-Smith, DDS
This episode of the #BendyBodiesPodcast is by far the most comprehensive look at the lower body challenges people like me who have #EDS/#HSD face in keeping ourselves upright.
The advice I wish Iβd gotten 20 years ago? You knees hurt because your hips and your ankles are off. Lo and behold, that has indeed been the culprit all along.
https://www.bendybodiespodcast.com/73-understanding-lower-extremity-pain-with-pradeep-chopra-md/
#Hypermobility #HypermobileEDS #ZebraStrong #TogetherWeDazzle
New research suggests genetic identification for #eHDS -- #MTHFR.
I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for #HypermobileEhlersDanlosSyndrome gives me great hope.
#HSD #Genetics #EhlersDanlosSyndrome #ChronicPain #MyEDSChallenge #MyHSDChallenge #TogetherWeDazzle #ZebraStrong
Bending Over Backwards: Vitamin Deficiencyβs Surprising Role in Double-Jointedness and EDS
Scientists have linked hypermobility and related disorders to a folate deficiency caused by a genetic variation, offering new diagnostic methods and treatment possibilities with methylated folate. Tulane University researchers have discovered a possible genetic cause for hypermobility (commonly k
Nyx NightShade β
Glad I was able to see the cyclathon through their first goal tonight, but now I need to sleep. π€ π΄
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
πππ
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
The cyclathon just hit $360k. And we have a singing stream from Ironmouse. I love it. πππππ
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
πππ
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
I had to walk away from my screen to take care of some household chores, and when I came back, they had $350k! ππππ
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
πππ
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
1 hour and 12 minutes into the stream and the guys have raised $330k for the IDF, and they've only done 11% of the cycle! πππ
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
πππ
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma
Leah AsheIt's International #DayOfTheZebra! But why do we use the zebra in our logo, and why is our dazzling community #ZebraStrong? β
β
Medical students have been taught for decades that, βWhen you hear hoofbeats behind you, donβt expect to see a zebra.β In other words, look for the more common and usual, not the surprising, diagnosis.β <Continued in comments>
β
Source The Ehlers-Danlos Society
#hEDS #EDS #ehlersdanlossyndrome
#chronicillness #chronicpain #zebra #dazzle
Gemma Hentsch