Budsofstone
Thiago Carvalho"Here, we describe a patient with selective IgA2 deficiency (CD068) with concomitant small intestinal Crohnโs disease (CD) and duodenal and ileal inflammation. To our knowledge, this is the first case of IgA2deficiency with a potential link to inflammatory bowel disease (IBD). This report might provide insights into potential IgA2-specific functions."
JesSo, a proper introduction seems important to me. I'm from rural Pennsylvania, now living in Illinois. My health started failing in 2017ish. Ever since, it's been a full time job to keep up with my many symptoms. Dx #hEDS in 2021, then #Primaryimmunodeficiency in 2022. I'm #ActuallyAutistic and am lousy at making and keeping friends. Still trying to avoid getting Covid makes that harder, when the majority of the world has seemingly moved on. I just want to find some kindness and solidarity here!
Kim Hanson
Nyx NightShade โ
Glad I was able to see the cyclathon through their first goal tonight, but now I need to sleep. ๐ค ๐ด
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
๐๐๐
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
The cyclathon just hit $360k. And we have a singing stream from Ironmouse. I love it. ๐๐๐๐๐
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
๐๐๐
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
I had to walk away from my screen to take care of some household chores, and when I came back, they had $350k! ๐๐๐๐
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
๐๐๐
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k
1 hour and 12 minutes into the stream and the guys have raised $330k for the IDF, and they've only done 11% of the cycle! ๐๐๐
https://tiltify.com/@cdawg-va/connors-cyclethon-2
http://www.twitch.tv/cdawgva/squad
You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:
http://www.twitter.com/ironmouse
๐๐๐
#idf #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma
Feeling defeated. I have one last attempt to see if I can get any other board members but if not it may be time to move into another organization to effect changeโฆperhaps a long covid organization may be more appropriate. This has been an exercise in futility with energy that I donโt have. #ProtectTheImmunocompromised #LongCOVID #Primaryimmunodeficiency #fatigue #covid
Been quiet lately. Long covid has been keeping me tired. Iโm working and then Iโm done. Things have improved: cardiologist figured out I had Pericarditis for the past 9 months (not anxiety after all PCP!), the chest pain is mostly resolved!! Unfortunately the brain fog and memory has declined terribly. The fatigue, tachycardia, shortness of breath and post exceptional malaise still holding me house hostage#LongCOVID #ProtectTheImmunocompromised #MaskEverywhere #Primaryimmunodeficiency