Xavier Ashe 
Leah Ashe
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- 7 Following
- 28 Posts
(She/her); Wife & mom of many; proud #Jew; #chronicillness survivor; #EhlersDanlos; #Zebra; #greatdane; #ballpython; #beardeddragon; #vivarium; #disabilityadvocate
Here's the ABC article that covers #ParasolPatrol. So awesome. I can't wait to help.
https://abcnews.go.com/US/meet-team-facing-off-anti-lgbtq-groups-drag/story?id=97521012
I just learned about #ParasolPatrol, a group that does anti-protest against hate groups that try to protest LGBTQ+ events. I just signed up!
Marian Croak is behind the tech that enables us to talk on FaceTime, Zoom, and other apps that connect friends, family and others around the globe.
Marian Croak from the Great Class of 1977 holds the patent for Voice over Internet Protocol (VoIP), which helps us make calls over the internet instead of a phone line.
Marian Croak has spent her life inventing. After graduating from #princetonuniversity and earning her Ph.D. from #uscedu, she worked at Bell Labs-Nokia in New Jersey, creating technologies “in service of humanity.” She went on to work for AT&T and is now vice president of engineering at Google.
In 2022, Marian, owner of 200+ U.S. patents, was one of the first two Black women to be inducted to the National Inventors Hall of Fame. Among her inventions is the text-to-donate function that her team helped create in the wake of Hurricane Katrina, which has helped to raise millions of dollars since its inception in 2005.
Croak also leads the Research Center for Responsible AI and Human Centered Technology at Google, which “ensures that Artificial Intelligence and Machine Learning positively impacts users and the world, particularly marginalized communities."
Content/photo credit Princeton University Instagram, courtesy of the Inventors Hall of Fame. #BlackHistoryMonth #MarianCroak
Advocacy and Support
A group of zebras is called a dazzle.
Living with an EDS or HSD is not always easy. We take comfort and pride in the strength and support of our community, and what we can achieve together. Together, we dazzle!
A group of zebras is called a dazzle.
Living with an EDS or HSD is not always easy. We take comfort and pride in the strength and support of our community, and what we can achieve together. Together, we dazzle!
When you see a zebra, you know it’s a zebra—but no two zebras have identical stripes just as no two people with an Ehlers-Danlos syndrome or HSD are identical. We have different symptoms, different types, and different experiences—and we are all working towards a time when a medical professional immediately recognizes someone with an Ehlers-Danlos syndrome or HSD, reducing the time to diagnosis, and improving pathways to care.
People with rare and chronic diseases spend years searching for answers:
“But you look normal”
“You’re too young to have so many problems”
“You’re too old”
“You can’t have that, it’s too rare”
“No one knows what that is”
The zebra became our symbol because those with Ehlers-Danlos syndrome and hypermobility spectrum disorder are the unexpected. “Sometimes when you hear hoofbeats, it really is a zebra.”
It's International #DayOfTheZebra! But why do we use the zebra in our logo, and why is our dazzling community #ZebraStrong?
Medical students have been taught for decades that, “When you hear hoofbeats behind you, don’t expect to see a zebra.” In other words, look for the more common and usual, not the surprising, diagnosis. <Continued in comments>
Source The Ehlers-Danlos Society
#hEDS #EDS #ehlersdanlossyndrome
#chronicillness #chronicpain #zebra #dazzle
It's been only a few days since I opened https://bookwyrm.tech to the world and we're now the 25th largest #Bookwyrm server in the #fediverse. Thanks to everyone that's jumped in to start this great community.
Bookwyrm is a social reading tracking site (similar to #goodreads) compatible with #activepub... meaning you can post your book updates to Mastodon. Like this: @[email protected] !
Bookwyrm.tech is a community for readers of technical books. Yes, you can post about normal books too. Come join us and tell us what the best #python book is. Or which #infosec book should I pick up next?
I have two autistic teenagers still up. One of them is watching a video of someone counting. They are currently on 816...