A source for soundproofing material. From a report on a carers' group meeting.
Links:
https://www.audimute.com/?srsltid=AfmBOoroq-oztCCyDsWYuOfTj0brxVBYOTicWgLq0x0-AfSMtfxwM4Wa
https://www.amazon.com/stores/Audimute/page/A4D2379B-B4AD-4700-A085-096A2AF15C1F
COI: I have no financial or other interest in these companies
#SoundSensitivity #NoiseSensitivity #LongCovid #MEcfs #CFS #PwME #SevereME #SevereMECFS @longcovid @mecfs
"A long-term study conducted by SoundSense has identified a correlation between a person's sensitivity to loud noises or specific tones that were often inaudible to others, and that person's state of ill health or a health condition"
https://www.ingentaconnect.com/contentone/ince/incecp/2024/00000269/00000001/art00047
@hyperacusis #NoiseSensitivity #SoundSensitivity #Hyperacusis
At an event where we have been bussed 30 minutes away to stand in a (nicely decorated) open air barn with 100 overly loud tech people while loud music is blasted at us.
MUST BE HAVING A GREAT TIME IF WE ARE ALL SHOUTING!
I’m wishing I’d brought a book but hiding with noise cancelling earphones and frustration-tooting is what I have 😅
#SoundSensitivity #accessibility #triggers
I bought the same headphones yesterday to replace my old xm3. ANC headphones are game changer for me. They reduce my anxiety which I wasn't aware of before I found I'm an autist.
@actuallyautistic
Just a quick PSA.
Treated myself to my first ever noise cancelling headphones. Sony WH-1000XM4 for anyone interested. I can't do a product review as such, because of course I've never owned anything to compare it with. But a few things occurred to me that might interest anyone else in my position and thinking about doing the same. First of all, the sound cancellation is incredible, I mean completely amazeballs, far better than the loop Quiets that I use all the time (and also swear by), but it is not total. There is a small amount of sound in certain registers, but it is very distant and even I had to focus to hear some of it. Also one of the things that I've often wondered about these things, is that the ANC cancelling works without being connected to anything. Once initial set up is complete all you have to do is switch on the earphones and away you go. No need to burn through data or be tethered to a phone. There is a vague weirdness to the active ANC system though, not a noise exactly but more of a slightly queezy feeling that I'm sure I will get used to and is probably something to do with the sound negation. All in all though the joy of pretty near silence is incredible. Oh and if you do buy a set like this with voice activated functions, dig around in the control app and you will find the damn off switch to them. So all I can say, from my point of view is why the hell did I wait so long.
Higher noise sensitivity + inadequate acoustic environments + lack of understanding = negative impact in the short and long term
Next steps for Carmen Rosas-Pérez:
• survey for noise-sensitive people: https://www.surveylab.com/pageTag/SurveyCampaign/cId/c691eec8a46b7525d78219435729ff19685b81a1da/ (please participate!)
• listening experiment (online – no link – and in Edinburgh)
Email contact: [email protected]
(Lunch break now)
Music, silence, natural environment – all positive influences on health and wellbeing
‘The way I experience music that I like is through my whole body, is through my skin, like waves of music. That’s really, really special and I’d hate to lose that’
Schools in particular can be sensory hell
Things that help: quiet/outdoor spaces, *being believed*
We need agency over our environment – building design seldom takes us into account
(That last post was straight from a slide btw)
High sound sensitivity affects every aspect of life
• Sensitivity is variable
• High perceptual capacity and engagement with the surrounding environment
• Diagnosis has increased their knowledge and confidence
‘I just thought I heard everything the same as everybody else, and that they were better at kind of processing it than I was in some ways’
Many probably know this but I just heard there are some quiet hair dryers on the market now. Could be useful for households where there is somebody with #soundsensitivity e.g. people with #MyalgicEncephalomyelitis, #autism, etc.
I wish part of testing audio devices was testing how they function on the lowest sound volumes too.
I'm incredibly sound sensitive. Cannot handle repeating sounds or any kind of loud volume. My beloved headphones are literally flaking apart so I'm looking for some new ones, and I know I need to pay a bit bc comfort and sound quality (and wireless) is paramount for me.
I found these studio-quality Shure 50 headphones on a deep discount bc they were store display, and even tho all reviews said the sound quality was great I found them too harsh and felt like I was being shouted at, even at the lowest volume my devices can go. None of the EQ settings made any difference.
Have the same issue looking for a speaker for my pc. I use a portable one bc of form design, and finding out which ones work at low volumes is impossible
Tom Kindlon
Donovan H
Autistrain
Kevin Davy
Anna Nicholson
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