Echo 

@ZebraOnWheels@mstdn.social
255 Followers
59 Following
427 Posts

About me: 90's girl, Dutch, English, Dog Mom. (She/her) #ActuallyAutistic.

Job: Audio-Visual Specialist (local news, video's, teaching interns) #AdobePremierePro

What I like: #Ocarina #Ukulele #Otamatone #StarTrek #Tamagotchi #Crocheting #ScienceFiction #TheSims4#Plants

Things I also talk about: #EhlersDanlosSyndrome #WheelchairLife #Disability#Dysautonomia

Languages?Nederlands, English
Ponouns?Zij/Hen - She/They
💍❤️?9 years and counting!
Words to live by:https://www.desiderata.com/desiderata.html

A new wheelchair from the inventor of the Steadicam, via CBS News

#disability

https://www.cbsnews.com/news/steadicam-wheelchair-cbs-saturday-morning/

A new wheelchair from the inventor of the Steadicam

Garrett Brown is bringing the same mindset behind steady shots in movies to a new wheelchair designed to help people move better.

CBS News
@alexfiles hope they grow some empathy, through experience if needed 😐 I'm sorry they don't believe you.

@inkybat

Must be an #ActuallyAutistic thing, but I sincerely don't understand why people WANT to behave like utter sh*t to other people anywhere in this universe 🤔 😐

Jong persoon vandaag in de wachtkamer tegen dorpsgenoot: "Ik moest helemaal door de regen lopen, zou wel willen dat ik zo'n parkeer kaart had net als die gehandicapten".

Dorpsgenoot: "nee, je moet zeggen "mensen-met-een-beperking" of was het "invalide"?"

Dus ik zei "Gehandicapt" of "met een handicap" is prima. Maar als je de parkeerkaart wil, moet je de handicap ook overnemen. Oh en ik moest ook door de regen. De rolstoel heeft geen afdak. 😬

This seems a little drastic.
#Humor #SignFail #Funny

Airfit F30i

That's my new CPAP full-face but under the nose mask. Also the tube connects on top of the head, making me struggle less with it being in the way I hope. Also, I can wear my glasses with it!

Does anyone else have an experience with this one? Do you like it? #Resmed #Cpap #Osas #airfitF30i #sleepapnea #NEISvoid

@treleanor @EJGilbert I have heated tube and humidifier too and it's so comfy, my mom is jealous! (She doesn't have a heated tube)
@treleanor I am unable to get any of the other possible means due to my other disabilities 😂 so the cpap really is the last resort. So far I am not hating it!

// #Autism // person first - identity first //

I don't "have autism." I'm autistic. Just like the other folks don't have "allism". They're allistic. We're neurodicergent. Not "with neurodivergence" lol.

It's a way of being. I can't stop doing it when I feel like it. It's not like a headache, it doesn't go away.

You don't aquire it later on or anything either. #BornThisWay #ActuallyAutistic

Patients with #EDS & #HSD can spring CSF leaks anywhere along their dura and from noses & ears http://ohtwist.com/about-eds/comorbidities/ #HSD #meded #FOAMed #hypermobility #doctors #nurses #medstudents #Medicine #NEISvoid
Comorbidities Common with Ehlers Danlos Syndrome

Comorbidities (unofficial) listing of diseases and syndromes that are commonly found in people with Ehlers Danlos Syndrome.

Oh TWIST
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Airfit F30i

That's my new CPAP full-face but under the nose mask. Also the tube connects on top of the head, making me struggle less with it being in the way I hope. Also, I can wear my glasses with it!

Does anyone else have an experience with this one? Do you like it? #Resmed #Cpap #Osas #airfitF30i #sleepapnea #NEISvoid

@ZebraOnWheels
I don't have this exact one, but I use the N30i, which is similar. I can attest that having the tube connect at the top of your head does keep it out of the way (at least for me). I wear an eye mask with mine, and it does slightly get in the way, but not too bad. I'm sure wearing your glasses will work fine.

Mostly I feel like this type of mask is more stable than others. My son had one that just had a strap around the back of his head and the hose connected at the front, and it just kept falling off.