Echo 

@ZebraOnWheels@mstdn.social
255 Followers
59 Following
427 Posts

About me: 90's girl, Dutch, English, Dog Mom. (She/her) #ActuallyAutistic.

Job: Audio-Visual Specialist (local news, video's, teaching interns) #AdobePremierePro

What I like: #Ocarina #Ukulele #Otamatone #StarTrek #Tamagotchi #Crocheting #ScienceFiction #TheSims4#Plants

Things I also talk about: #EhlersDanlosSyndrome #WheelchairLife #Disability#Dysautonomia

Languages?Nederlands, English
Ponouns?Zij/Hen - She/They
💍❤️?9 years and counting!
Words to live by:https://www.desiderata.com/desiderata.html

A new wheelchair from the inventor of the Steadicam, via CBS News

#disability

https://www.cbsnews.com/news/steadicam-wheelchair-cbs-saturday-morning/

A new wheelchair from the inventor of the Steadicam

Garrett Brown is bringing the same mindset behind steady shots in movies to a new wheelchair designed to help people move better.

CBS News

Jong persoon vandaag in de wachtkamer tegen dorpsgenoot: "Ik moest helemaal door de regen lopen, zou wel willen dat ik zo'n parkeer kaart had net als die gehandicapten".

Dorpsgenoot: "nee, je moet zeggen "mensen-met-een-beperking" of was het "invalide"?"

Dus ik zei "Gehandicapt" of "met een handicap" is prima. Maar als je de parkeerkaart wil, moet je de handicap ook overnemen. Oh en ik moest ook door de regen. De rolstoel heeft geen afdak. 😬

This seems a little drastic.
#Humor #SignFail #Funny

Airfit F30i

That's my new CPAP full-face but under the nose mask. Also the tube connects on top of the head, making me struggle less with it being in the way I hope. Also, I can wear my glasses with it!

Does anyone else have an experience with this one? Do you like it? #Resmed #Cpap #Osas #airfitF30i #sleepapnea #NEISvoid

// #Autism // person first - identity first //

I don't "have autism." I'm autistic. Just like the other folks don't have "allism". They're allistic. We're neurodicergent. Not "with neurodivergence" lol.

It's a way of being. I can't stop doing it when I feel like it. It's not like a headache, it doesn't go away.

You don't aquire it later on or anything either. #BornThisWay #ActuallyAutistic

Patients with #EDS & #HSD can spring CSF leaks anywhere along their dura and from noses & ears http://ohtwist.com/about-eds/comorbidities/ #HSD #meded #FOAMed #hypermobility #doctors #nurses #medstudents #Medicine #NEISvoid
Comorbidities Common with Ehlers Danlos Syndrome

Comorbidities (unofficial) listing of diseases and syndromes that are commonly found in people with Ehlers Danlos Syndrome.

Oh TWIST

Medical // cramps // pelvic floor

I am having the worst kind of pelvic floor spasms and cramping. It's impossible to pee, I need to press on my bladder and then don't empty fully.

Right now I'm in a lot of pain. Took (nsaid) pain killers, am sitting on a heat pad... it feels almost like being on my period (with endo) only in my behind instead of belly and back.

Tips to make it stop / relax are appreciated.
#NEISvoid #Cramps #Pain #Medical

Ps, I managed to fall asleep with my full face cpap mask on! 👍🏼 kinda proud of my usually very difficult body and mind for just accepting it this soon.

I'm nowhere near sleeping through the entire night with the cpap on, but it is progress (?)

#cpap #osas #sleepapnea #sleepapnoea #NEISvoid

Happy holidays everyone ⭐️❄️🤍

Sleeping with a cpap mask is not easy.

I've tried for 4 nights, but I keep removing the (full face) mask because I can't fall asleep.
I'm gonna give it a month, though. Or longer if there's any form of progress. I will keep trying.

Tips to fall asleep with it on are appreciated.
#cpap #osas #sleepApnea #sleepTherapy