Rebecca Weger

0 Followers
73 Following
52 Posts

She/Her πŸ³οΈβ€πŸŒˆ β™ΏπŸ˜·

β™₯️ Mutual Aid, community care, disability Justice, politics
πŸˆπŸ§ΆπŸŽ¨πŸ–ŒοΈπŸ“šπŸ“°βœοΈπŸ“Ί

#Disabled #ChronicallyIll #pwME, #POTS, #Fibro, #MCAS, #Autistic

Mehttps://rebeccaweger.com/
Linktreehttps://linktr.ee/rebeccaweger

I don't have anyone in particular in mind here, but there is definitely a pattern I've observed that seems worth calling some attention to.

Entrenched, systemic oppression relies very heavily on making it difficult to change - that's the nature of power inequality: those impacted have less capability to affect things.

But *everyone*, regardless of level of privilege, is subjected to a kind of systemic exhaustion. "Change is too hard and too slow" is the bottom line, but the idea is rarely expressed so plainly. It's often felt, but rarely put into such blunt words.

So let's talk about spoonies for a second. I'm referring to those of us who have to be extremely careful about where we place our energy every single day, because we just don't have that much capacity to do *anything*, let alone all the things daily life demands of us, plus take on changing the world.

Oppression is designed so that the path of least resistance always serves to reinforce that same oppression.

This means that liberation is always going to be a huge amount of work. In fact, it is - by design - more work than we can actually take on directly, in a limited amount of time. This is *why* oppression has never gone away: it is literally designed to be immune to erosion.

But as anyone who is disabled or lives with chronic pain or illness can testify, just because it's too big to do all at once, doesn't mean we can't handle it at all.

We just have to be very, very wise about how we allocate our energy.

And anyone who wants liberation is going to have to learn those skills. Otherwise the system will continue to chew y'all up, spit you out, and eliminate yet another group of people who *might have* made a much bigger difference if you'd been able to avoid burning out.

So what better way than to learn from those of us whose literal daily survival depends on us being very good at that exact skill set?

#Disability #DisabilityJustice #Spoonies

@MEhemann Many of us have spent a lot of time and money chasing cures that don't yet exist.

So we focus on what can help more reliably, rest, limiting energy use, pacing. Getting the help and support we need. Educating others as we're able.
And supporting the researchers who are working their butts off looking for answers.

Wishing your wife good rest and more good days.

I'm teaching myself how to make some zines! And reaching back 30 years for tidbits of memory from my college bookmaking class. It's fun and creative.

But it also serves an important function as someone who is predominantly #housebound and #bedbound due to #MECFS and #POTS. I rely on paid and volunteers caregivers to do most of the labor in my home. And training them takes energy. So hopefully this will help, and I can update as needed.

#DisabledArtist #Zines #ZineArt

@jeshyr hugs if you want them!
@jeshyr Oh Ricky, I'm so sorry!
Being chronically ill is exhausting but I always try to save one spoon, the one I use for punching Nazis.

Happy Deductible and Out Of Pocket Max Resetting Day to all my disabled and chronically ill friends.

I’m spending the day figuring out which of my medications that cost thousands of $$$$ a month I can skip until I β€œonly” have to pay 20%. 😭

@Aaidanbird @[email protected] @DisabilityJustice

#MutualAidRequest #NEISVoid

I'm Rebecca in #Ithaca NY, US, with severe #MECFS. Life is stressful.

I need to find a new part time caregiver. I pay through CDPAP, so it's only $15.30/hour, but my home is an awesome place to be.

I also need help finding a new roommate to rent my 2nd bedroom. COVID precautions required. Cat and dog onsite.

In lieu of that, help paying rent on my own is helpful!

https://venmo.com/RebeccaWeger
https://www.paypal.me/rebeccaweger

Venmo | Rebecca Weger

Venmo is a digital wallet that lets you make and share payments with friends. You can easily split the bill, cab fare, or much more. Download the iOS or Android app or sign up on Venmo.com today.

Hello and welcome to disabled.social’s #MutualAid Thread!

We'll host these 2x a month. Reply to this post with your request. When replying to our thread, use the unlisted privacy. We will then boost it for you and help with getting it seen.

Please follow the style listed in 2nd post of this thread (it helps folks know how to help!)

For others, if you wish to help, please review, aid those in what ways you can, and boost!

#NEISVoid #MutualAidRequests
@[email protected] @DisabilityJustice

@instudio I figure it's also likely to be the catalyst for me to receive an excellent quantity of adorable photos texted to me in the future.
Unless they hate it all and just want the box. 😸