Deficit or difference?

There are a few things about autism that it takes quite a lot of ingenuity to consistently frame them as negative.

I've listed some of them here...

A thread 🧵

ā¬‡ļø

#Autism #Neurodiversity #Neurodivergent #ActuallyAutistic

1/13

Deficit or difference 🧵

Autistic deficit no.1:
Preferring clear, direct communication.

In the ā€œnegative or nothingā€ model of autism, this is framed as rudeness, and social failure.

2/13

Deficit or difference 🧵

Autistic deficit no.2:
Taking words seriously.

In the ā€œnegative or nothingā€ model of autism, this is framed as literal-mindedness, rather than respect for meaning.

3/13

Deficit or difference 🧵

Autistic deficit no.3:
Needing explicit expectations.

In the ā€œnegative or nothingā€ model of autism, this is framed as rigidity - rather than being unwilling or unable to adhere to invisible, illogical, and/or inconsistent rules.

4/13

Deficit or difference 🧵

Autistic deficit no.4:
Deep focus and commitment.

In the ā€œnegative or nothingā€ model of autism, this is framed as obsession, rather than depth, care, or expertise.

5/13

Deficit or difference 🧵

Autistic deficit no.5:
Sensory intensity.

In the ā€œnegative or nothingā€ model of autism, this is framed as overreaction, rather than a body receiving a great deal of information.

6/13

Deficit or difference 🧵

Autistic deficit no.6:
Not performing hierarchy and status games fluently.

In the ā€œnegative or nothingā€ model of autism, this is framed as social naivety, and not as just a different relationship to power.

7/13

Deficit or difference 🧵

Autistic deficit no.7:
Emotional or cognitive intensity.

In the ā€œnegative or nothingā€ model of autism, this is framed as dysregulation or maladjustment - rather than a high level of engagement & responsiveness to the world.

8/13

Deficit or difference 🧵

Autistic deficit no.8:
Honesty and consistency.

In the ā€œnegative or nothingā€ model of autism, this is framed as bluntness, inflexibility, or lack of tact.

9/13

Deficit or difference 🧵

Autistic deficit no.9:
Stimming or moving differently.

In the ā€œnegative or nothingā€ model of autism, this is framed as inappropriate behaviour, rather than as self-regulation.

10/13

Deficit or difference 🧵

Autistic deficit no.10:
Not automatically prioritising appearances.

In the ā€œnegative or nothingā€ model of autism, this is framed as poor social awareness, rather than a refusal to make surface performance more important than deeper things.

11/13

Deficit or difference 🧵

Autistic deficit no.11:
Being distressed by injustice, hypocrisy, or coercion.

In the ā€œnegative or nothingā€ model of autism, this is framed as challenging behaviour, rather than an accurate response to something being very wrong.

12/13

To sum up, many autistic ā€˜deficits’ may only be deficits in a material world that needs very high sensory tolerance & the constant filtering of a barrage of human-made information...

... and in a social world that's built around implication, hierarchy, performance, and obedience.

13/13

Can anyone think of more things?  Whatever your view, comments very welcome!

I’ve explored the ā€œnegative or nothingā€ theme more here: https://www.neurofabulous.org.uk/autism-negative-or-nothing.html

Autism: negative or nothing – by K.J. Elphinstone

An article about autism, labels, neurodiversity, social legitimacy and the politics of the ā€˜negative or nothing’ model.

Neurofabulous
@KatyElphinstone I only see one problem here: being subject to judgment from neurotypical people. What's the point of that? Since I've been avoiding those people, there hasn't been a problem. šŸ¤“
@danimo @KatyElphinstone The problem is that neurotypicals rule the world.

@danimo @KatyElphinstone I feel that.

Like I have no issue being lgbtq, but the homophobia does. The problem is the rejection, not the rejected.

@KatyElphinstone
Basically we are inconvenient to certain people. I tend to think that's why Kennedy has targeted autism.
@CassandraVert @KatyElphinstone Authoritarians gotta authoritarian, and the set of behaviors described in the thread definitely go against it.

@KatyElphinstone having to understand things from first principles (not accepting something just because someone said it).

Usually framed as a negative, but actually getting to the bottom of a thing rather than just accepting someone else’s possibly-misunderstood explanation is a superpower.

@GentlemanTech

Good point. Not accepting theories without any data or evidence.

@KatyElphinstone @GentlemanTech definitely superpower, but the problem comes when we are presented with what the speaker firmly believes is a full explanation, but we can't understand it because, in fact, it isn't.

"the flamger will only go in this way up."
"obviously not. it would work fine the other way up. …oh! wait! if you put it in that way up there's no room for the floobis!"
"… i … guess?"
"NOW i understand!"

@fishidwardrobe @KatyElphinstone I have definitely had conversations like this :)
@KatyElphinstone That’s a good list. A few of mine are slight rephrases: that I assume equality between parties (may be related to you social hierarchy one), that I assume people say what they mean (taking words seriously), and that people are capable of negotiating what they need (direct communication). My rule zero, though, is that I don’t intuitively prioritize performance of social agreeability with human social pack dynamics, and this seems to be the crux of my disconnect.

@dsri

Yes! Assuming equalities between parties. I actually prefer your way of putting it.

@KatyElphinstone They don't appreciate their 'nakedness' in our eyes. Stripping bare their pretenses, is a no-no.

@Tooden

Indeed it's true, that all this represents quite a threat to the status quo.

@KatyElphinstone
the problem is, in current society, a "normal" person cannot be exempt from the harsh judgement of our lord and savior, the market. If you're Autistic you need to decide if you're on the exempt side (all bad) if you're on the not exempt side (aren't we all a bit...).

That's why self diagnosis is so reviled. Trying to get exempt from the market without a doctor? What if everyone wanted to be exempt?!

@eladhen

Exactly this. Very well put.

@KatyElphinstone
I feel like most of the time when people challenge my Autism they're saying "why should you be treated like humans and not like normal crap of the earth like the rest of us?"

@eladhen

Which is a very good point. But instead of attacking the autistic person.... one could try attacking the system instead. šŸ¤·ā€ā™€ļø

@KatyElphinstone of course. But the system is invisible. You need a mental model of it to start seeing it, and our society did a lot to help us forget and naturalize the system.

@eladhen

Yes.... it's very Wizard of Oz. Hidden, and assumed. Invisible in plain sight. And not a very reachable target. Much more satisfying to kick down & have your blow connect with something satisfyingly soft. 😬

@KatyElphinstone
my read is that "the autism epidemic" is actually the breakage of our "normal" with a normality that is drifting away from sustainability even on a personal basis. And autists are just the canaries in the coal mine.
@eladhen @KatyElphinstone There is no more ā€œwildernessā€ or ā€œfrontierā€ to escape to. We are stacked up together and forced to live in close proximity. In an earlier, simpler time you could be a hermit or ā€œcrazy old witchā€ who lived in the woods and only interacted with others as your comfort level allowed. The current world forces a societal behavior that many find difficult.

@hal_pomeranz

I suppose wilderness, away from humans, was perhaps a lot easier to come by.

@eladhen

@hal_pomeranz @KatyElphinstone
I myself think it's interesting that we don't need to go to premodern society. The Autism Epidemicā„¢ is not modern, it seems to be "getting worse" the more destructive, mechanical, alienated, deceitful and hypocritical neoliberal society is becoming once it starts to encounter the natural and societal limits to "eternal growth"...

@eladhen

I also think it's unlikely the two things are unconnected.

@hal_pomeranz

@KatyElphinstone As a corollary to the power AND the understanding thing - most autistic people I know are highly individual in their choices, e.g. media, clothes, etc. Their tastes are less susceptible to advertising manipulation. This is a deeply threatening trait for a capitalist system.

@GinevraCat @KatyElphinstone I think this also ties in with not wanting to rise and expand. I live in a small space and I like it because if I had more space I would get anxious about how to best fill it or what to use it for. when I imagine what I would do if I won the lottery, buying a bigger or fancier home or luxury possessions would not be important to me because what I have works.

I would stress out over the best way to spread the money (like how much my family could use or what causes, organizations, or individuals will use it with the greatest effect in both short and long term) so I'd actually prefer a modest amount to an obscene one. I would budget myself to enjoy things like travel and learning and community engagement. I would enjoy the time this gives me more than the money, but even in that case I would feel pressured to fill it wisely—not out of social expectations but out of my own principles.

@theynege Just in case the universe reads my feed, just saying, I would be 100% OK with an obscene amount of money.
(By obscene, I mean starting my own foundation, having enough to support a handful of charities well, AND never have to work for money again if I didn't want to).

It's possible I spend a LOT of time planning this as a broke student :D.

@KatyElphinstone

@theynege @GinevraCat @KatyElphinstone

My hypothetical lottery spending *would* still include a house... But it certainly wouldn't be a full-on mansion or anything, it'd just need to be big enough for me and my autistic partner to have spaces for different sensory and special interest inputs. So there'd be a dark shiny "home cinema" that would in practice be used for video games and as a quasi-sensory room, another room for board games, the garage wouldn't be for cars (we can't drive) but be a space to jump around in noise isolation when one of us needs that stim...

...I would also absolutely go through all kinds of decision anxiety loops around what else to do with the money! I've joked that my "I wouldn't tell people I won the lottery but there would be signs" would be "there's been a mysterious surge of marginalised composers writing soothing music for low voices/instruments" (from me commissioning all of it) šŸ˜‚

@theynege @GinevraCat @KatyElphinstone Also, honestly, the main reason I'd move house to begin with would be "to a quieter place than this, and probably Scotland because it's cooler and we're both heat-sensitive."

Riffing off the name of a property-hunting TV show here, I've joked that this property search process would be "Escape to the Thermally Acceptable Country" - and I know autistic friends plural who have, in fact, moved to Scotland for the weather, much to the confusion of the NT sunseekers around them!

@shinybat

I love Scotland. The only downside is huge corporate landowners and how the land is used. It's essentially an ecological desert. In spite of being very beautiful and, as you say, a nice temperature. But I miss the oak forests in Italy, where the land is managed and owned in much more ecological ways.

@theynege @GinevraCat

@shinybat @theynege @KatyElphinstone This would definitely be a reason for me to move.
@shinybat @theynege @KatyElphinstone Worthy plans indeed! I'd definitely require photos!

@KatyElphinstone Thank you for the write-up! (And the linked article) I once took the TT-38 personality test and was assigned the Rightous Crusader trifecta talents - basically, high morality, high judgement and they were very confused when I took that as a compliment šŸ˜‚.

It was supposed to teach me that I should loosen my standards 'to be agreeable' - nevermind that the runner-up talents were cooperation, supporting others and teamwork.

You helped me understand this bewildering experience!

@tofticles

Haha well that is brilliant!! I am personally completely supportive to you over here.

I've always found it really odd that moral consistency could be framed as a deficit šŸ¤·ā€ā™€ļø

@KatyElphinstone @tofticles "yes we *say* that morals are important, but nobody actually *acts* like it!"
@lizzard @KatyElphinstone @tofticles I do, though that is possibly linked to good old autistic justice sensitivity and rule following preferences
@Aspiedan @KatyElphinstone @tofticles I do, too, or at least aspire to. We must both be defective, seen from a neurotypical point of view.

But @KatyElphinstone, how are we going to maintain a status quo where the few rule over the many if we can't have gas lighting or bad faith?

What ever will come of our societets self-image as "just and fair" without resorting to logic like in an M. C. Escher illustration (where although individual steps make sense, the model proves irrefutably incoherent when viewed in full).

Striving for a genuine moral consistency would require change! Oh, Won't somebody please think of the establishment!?

@jordgubben

Hehe šŸ˜†
Poor old establishment.

@KatyElphinstone

Thinking about not playing status games well led me to realize that this is why I learn by example so poorly. Give me the instruction book and I'll master a subject, but learning example is painful.

My path from status games to learning by example is both too long and too personal to post here, but to me that seemed a causal connection.

But then I realized it could be the opposite: I don't play status games fluently because they are only ever demonstrated, never explained.

@jmcclure

"I don't play status games fluently because they are only ever demonstrated, never explained."

Goodness. I never thought about it like this before. Realise that things do need to make sense to me, otherwise I find it very hard to adhere to them.

@KatyElphinstone

Also, drawing on your wonderful article: I am a person with autism in precisely the same way that I am a person with fingernails.

@jmcclure

Hehe! I just wouldn't be me without my fingernails āœ‹

@KatyElphinstone @pathfinder
From this, I’ve been wondering if the modern distaste/alarm with autism is mostly built around the resistance to the status quo. So a bit apropos to our current authoritarian dive.

@null_hypothesis

Yes, I really wonder how strong the connection is there. There are just so many interwoven elements. Things in autism that wouldn't be considered pathology if they didn't go against the norm - and indeed, challenge the norm (sometimes just by existing).

@pathfinder

@KatyElphinstone @pathfinder
I don’t have anything concrete, but the popular narrative seems to put autism (&c) as a novel factor, only named inside the last 100 years.
I believe it has been a part of human populations for a very long time.

@null_hypothesis @KatyElphinstone @pathfinder

yes, autism, Trans, womens rights, all threats to the white make NT hegemony.

@KatyElphinstone "a barrage of human-made information" a summary of all of my triggers.

Behavior: Avoidance of eye contact.
Goodness: I avoid breathing in their germy breath when I am not looking at them.

Behavior: hands on hips, arms crossed.
Different, not defiant: I need to rest my arms somewhere.

Behavior: easily distracted
Me, noticing a child wandering by herself, I saved her from drowning. Nobody else even noticed her wandering into the pool area.

@GreenRoc

Thank goodness you were there.... distracted....

@KatyElphinstone
Bad for society: Pathological Demand Avoidance

Good for self: Persistently Demanding Autonomy

@KatyElphinstone there are cases in which a deficit is definitely a deficit (for example, experience of pain delayed to the degree that it becomes impossible to learn that touching the hot thing or kicking the table leads to harm). In all other cases, it is a difference. It might even be a difference you enjoy having.

@venite

True indeed. There are things that are simply not good, whatever way you look at them.

@KatyElphinstone How about needing to understand the whole system before making a decision?

In the "negative or nothing" model of autism, this is framed as meddling, overthinking, poor role awareness, or refusing to stay in one's lane, rather than as an attempt to understand--and often identify and trying to fix--dependencies, consequences, hidden assumptions, and failure points before acting on less important elements.