"Those Who Were Already Here"
Another blog post by Fred Rossi that has been well received
https://darthfoo.substack.com/p/those-who-were-already-here
Screenshot from AMMES June 2026 newsletter
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #MEcfs #PwME #ME #MyalgicE
@mecfs
US research
Plasma Extracellular Vesicle Surface Marker Profiling Reveals Immune Cell–Associated Mitochondrial Membrane Potential Alterations in Long COVID and ME/CFS
https://dx.doi.org/10.1093/ofid/ofag209
Screenshot from Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #MEcfs #PwME @mecfs
Chronic fatigue syndrome in nursing practice: a concept analysis
https://link.springer.com/article/10.1186/s12912-026-04749-y
Screenshot from Science for ME weekly update
RE: https://disabled.social/@halcionandon/116719213799485757
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/ - The Canary article
https://chuffed.org/project/161937-help-anna-escape - Chuffed
Anna needs accommodation urgently.
#melbourne #australia #mutualaid #disability #accommodation #accommodationneeded #disability #disabilityjustice #melbournehousing #melbourneaccommodation #domesticabuse #domesticviolence #mecfs #covidconscious #chronicillness #help #spoonie #severeme #urgent #advocacyneeded
This programme is in Irish but English subtitles are available.
Jacqueline (in photo) discusses ME & the effect it has had on her a bit in the programme.
Timestamps
1st segment starts 6:42
8:34 chronic illness mentioned briefly just to say single-income family
10:14 segment ends
2nd segment: 17:37
18:30 condition mentioned and then there is more discussion about the effect ME has had on Jacqueline's life
End of segment 22:25
RE: https://disabled.social/@ahimsa_pdx/116722104340886902
Reminder, this webinar is today!
Inga Williams: "I am actively recruiting for my observational study to help us understand what causes PEM, so we can improve care for those who experience it. My email address is :
I am extremely grateful to my supervisors, mentors and donors."
(Copied from another social media platform)
RE: https://disabled.social/@tomkindlon/116674622676184294
When the sun comes out, rather than going to the back garden which is quite far for me, I’m lying on the front lawn which is close to a public path. Two people already this week have asked am I ok! Anyway I don’t care if the cost of getting some time in the fresh air is some random people think I’m a bit weird.
#mecfs #pwme @mecfs
Tom Kindlon
dobrochna
dgspsoa
Irish ME/CFS Association
Ahimsa