If you have #SevereME, like me, you are valuable however and whenever you can show up
I’ve hosted monthly support group meetings for Iowa #dysautonomia and #EDS patients for years, it takes a lot, can’t always do it, but everyone is grateful for these spaces no one else provides
UK NHS England releases e-learning module “Supporting people with severe ME/CFS”
https://learninghub.nhs.uk/Resource/79376/Item
Screenshot from latest Science for ME weekly update
#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
15/
More from a series of comic strips about life as a person with ME/CFS.
"George and His ME/CFS"
🎨Rick Menard
This is the last one.
Quote:
A former supervisor of mine said to me about 25 years ago: “It must be nice to be a PWD (person with disability) on assistance; you get to sit around, eat bon bons, and watch TV.”
After I took the knife out of my chest, my reply was: “No, it’s like being a very large tiger trapped in a very small cage chewing on the bars.”
"Marcia: Life with severe ME is like screaming into the void"
https://thesicktimes.org/2026/03/20/marcia-life-with-severe-me-is-like-screaming-into-the-void/
"Hope is tricky business. On the one hand it keeps me alive, it fuels my tenacity, it helps me take a deep breath and do my best to understand other people’s perspective so I can better build communication bridges."
Die Kundgebung anlässlich des Long-Covid-Awareness-Tags für ein besseres Gesundheitssystem, Anerkennung von und Versorgung für alle Betroffenen von Long Covid, ME/CFS und anderen postakuten Infektionssyndromen am 15. März 2026 vor dem Parlament in Wien zum Nachhören:
https://cba.media/763779
#mecfs #severeme #longcovid #postcovid #millionsmissing #chronischkrank #behinderung #socialjustice #solidarität
15.03.2026 - 700–1000 Personen demonstrierten am 15. März 2026 vor dem Parlament in Wien anlässlich des Long-Covid-Awareness-Tags mit der Initiative MUT – ME: Unterstützung und Teilhabe – für ein besseres Gesundheitssystem, Anerkennung von und...
Very sad to read of this 23-year-old with severe ME, ill since age 4.
Authorities are trying to claim that improvement/recovery is possible with the right attitude! They're using this to deny an application for a disability payment. ☹️
An example of the problem biopsychosocial models for ME/CFS cause.
#MEcfs #PwME #CFS #SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Emily Johnson
Tom Kindlon
ahimsa
🐧Danni 
nochrichten
Irish ME/CFS Association