Emily Johnson
lez-anyaPreviously safe foods are, tinight, being proven otherwise.
Exhausted, feel like trash.
Can anxietyy/stress/etc make MCAS reactions worse?
MichelleOver 9 years since I went to my doc complaining of reactions to scented products postpartum. 8 years to get a MCS diagnosis (& Sjogrens as a side quest), and another year to get MCAS. It feels validating but anticlimactic. I am already doing all the stuff. Many of my questions were answered with "we don't know." I was hoping that a diagnosis would open up a knowledge bank. I was also hoping for treatment options that I haven't tried. No luck but at least I'm on the right path.
#MCAS
#MCAS
RhyothemisUse of baking soda (sodium bicarbonate) to suppress allergic hypersensitivity reactions -
https://www.youtube.com/watch?v=LOnsjfECvr4&t=1984s
One of my main reactions is painful swallowing. I had an upper endoscopy to check for eosinophilic esophagitis but biopsies were normal - but I have the same symptoms as EoE. Pain is greatly reduced by drinking a baking soda solution.
I first tried baking soda after I noticed that my symptoms were worse if drinking something acidic (lemon water), and improved if I drank something basic (Oatly oatmilk). I had not seen the video or heard of the Japanese case report.
Mast Cell Activation Syndrome - Making the Difficult Diagnosis with Dr. Tania Dempsey
clarkiestarNow I feel I can be more committed to learning more about living with ADHD. The clinician strongly advised that I try meds. But I’ll need to be careful with that, as it could be really bad with MCAS.
#MCAS: unfortunately you did the unacceptable thing of having a body! Please refrain thank you
JuliaThis is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/
Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.
Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens
Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...
StarSloth#MCAS people: can you tolerate the following foods? Yes, partial/small amounts/when not in a flare, not at all, whatever details that you want to share.
Potatoes
Soybeans
Soy derivatives (sauce and other soy products)
Red beets
Krasse EloquenzWer an seltsamen Symptomen leidet, die er/sie keiner Ärztin erzählen kann (weil die einen für verrückt erklären würde), sollte mal zum Mastzellenaktivierungssyndrom (MCAS) recherchieren.
Gerade wenn Allergien und/oder Reizdarm hinzukommen.
Ich tippe darauf, dass da auch viele, auf die bisher der Stempel "hypersensibel" passte, hier fündig werden.