The Coroner of the #MaeveInquest has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of #UKgov & #NHSEngland. The link is to the three-page document, which is succinct and clear.
#SevereME #pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI
Link to #Virology blog:
https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf
#LadyShambles’ take on the #MaeveInquest result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:
1. M.E. Is a ‘physical’ (as opposed to psychological) disease;
2. M.E. can cause death;
3. #MEKills
Link to #Virology blog:
#pwME #MyalgicEncephalomyelitis #MECFS #ChronicFatigueSyndrome #CFS #PostViralFatigueSyndrome #PVFS #PostViralDisorder #ELCI
Find #MECFS, #LongCovid and related news, advocacy and research from w/c 5th August in our latest News in Brief post.
Topics:
#MaeveInquest
Other news, advocacy and articles
Resources for clinicians
Research news
ME/CFS research
& Long Covid research
https://www.s4me.info/threads/news-in-brief-august-2024.39640/#post-548066/
Our latest News in Brief forum post covers #MECFS, #LongCovid and related news, advocacy and research from w/c 29th July.
Topics covered this week:
News, including coverage of #MaeveInquest
Research news
ME/CFS research
& Long Covid research
News in Brief - August 2024 | Science for ME
https://www.s4me.info/threads/news-in-brief-august-2024.39640/#post-546901/
How Coroner’s Inquiry into death of Maeve Boothby-O’Neill unfolds – in quotes with media links – Week 2
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #SevereME #MaeveInquest @mecfs @severeme
Our latest News in Brief forum post covers #MECFS, #LongCovid and related news, advocacy and research from w/c 29th July.
Topics covered this week:
News, including coverage of #MaeveInquest
Research news
ME/CFS research
& Long Covid research
https://www.s4me.info/threads/news-in-brief-august-2024.39640/#post-546901/
On the 1st of May Sir Sajid Javid initiated a parliamentary debate on the UK’s abysmal record on the care and treatment of ME/CFS patients, whose ranks are now much augmented by Long Covid sufferers. There was an almost identical debate held in February 2018 in which the member for Glasgow Nor
Re #MaeveInquest :
I should have anticipated that all involved would have mentioned how they had since done various courses etc. in order to raise their awareness, knowledge & expertise of #MyalgicEncephalomyelitis #MECFS. If they did, I missed mention… 😡
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #ELCI #PostViralDisorder
How Coroner’s Inquiry into death of Maeve Boothby-O’Neill unfolds – in quotes with media links – Week 1
#MEcfs #CFS #PwME #SevereME #MaeveInquest @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
5/
Concluding paragraph from:
"Maeve Boothby O’Neill Inquest Highlights Major Systemic Failures at UK’s National Health Service and in Medical Education" by David Tuller
By David Tuller, DrPH Heartbreaking. Infuriating. Mind-boggling. Those three adjectives are as good as any to describe the testimony heard during the first ...
Colin-Roy Hunter
Science for ME
Ben De Nevis
Tom Kindlon