https://lloxie.dreamwidth.org/1462.html
Posted on my blog again! Think I'm sick again, weh. TwT

#blog #health #personalupdate #pcbuild

Question philosophique du jour: Dans un lieu neutre, où tout le monde a sa place, comment réagissez vous si quelqu’un tente de vous exclure?

Cindy Cinnamon Photographie
www.CindyCinnamon.com
Pentax ME Super
Flic Film Cine-Color 200T
Quebec Canada

#Pentaxian #FilmPhoto #FilmCamera #Argentique #BelieveInFilm #Photography #Photo #Pentax #PentaxMeSuper #PhotoWalk #35mm #FlicFilm #AsahiPentax #35mm #ColorFilm #ISO200 #ECN2 #CineColor #PersonalUpdate #MotivationalSpeech #Quebec #Canada

2025 Year in Review | A Quieter, More Intentional Year

https://makertube.net/w/ckEjUkCJ5yYu8VXWosuKkj

#mwgic #2025 #GoogleMeet #Google #MartialArts #Aging #Mobility #PersonalUpdate

https://youtu.be/XEAvbB6h1JQ?si=5uCt8Z3OPsheX4Tm

I've finally been referred to a 'local' M.E. clinic - it's miles away but they also work via Teams apparently & I'll have my hearing aids & lipreading, so will hopefully be ok.

Also applied for PIP - not for CFS/M.E. as I doubt I'd get it on that, but for my lifetime deafness + hearing aids costs. NHS don't offer the ones I need & I'd only get one anyway! My hearing aids are £2k+ & I'm on my second pair 😭 So expensive 🙄

#PersonalUpdate #deaf #chronicIllness #CFS #PIP #HearingAids #LifeStuff

Rainbow’s Week, Sept 18 2025

So, this is not exactly a weekly update, huh? The last one was September 7, 11 days ago. Oh well. This one can be Rainbow’s Almost-Fortnight.

To say hi, my name is Azure, and I’m a member of a plural system, which means multiple people in one bodymind. We share the name Rainbow and they/them pronouns. We are multiply disabled (autism, PTSD, ME/CFS, and others) and require assistive devices and caregivers.

This week-and-a-bit was actually even rougher than the previous week. I got majorly triggered twice again, and my executive dysfunction issues are even worse now. I think it’s because I changed depression medications. This new one does not seem to be doing much.

To follow up on the previous update:

1. The tasking hour did not work out. We can’t even handle an hour a day of tasks.

2. I’m still frontstuck (stuck in charge of the body).

3. The hair washing idea worked out! It actually works really well. I’m so glad.

New happenings:

1. I’ve been video calling a lot with people we’re close to. We’ve figured out a way to accommodate our autistic burnout: they speak, and we type. It requires a bit of gymnastics on Discord (I’ve been doing two browser windows side by side).

2. Four whole medical appointments and a vaccination (yay vaccines). I’m so tired. At least everyone accommodated our need to type instead of speak without question! I wish our phone had a louder speaker, sigh.

3. Lots of special interest time!! I’ve been working on our personal website, researching and using paid survey sites and stuff (which is, weirdly enough, a special interest), making spreadsheets, and writing blog posts about the survey/etc. sites.

Website: Since the previous “Rainbow’s week” update, using only online articles so far (as opposed to one-on-one help), I’ve added an RSS feed, a comment widget from online, blog post tags and tag sorting (coded manually), a custom domain, and a favicon (Wikipedia link). I have tried and failed to add mobile optimization… maybe later. I’m told it’s readable on mobile as is. Here is the website if you want to look at it!

Paid survey sites: I’ve been really excited about this! It certainly isn’t a well-paid job, but for what it is and how accessible it is to me, I’m impressed by how much I’ve earned so far. And I’ve just been having fun with it! I made a spreadsheet to track each site/app each day, just because I wanted to. I had fun with the functions.

Blog posts: I’ve only written one new one since last “Rainbow’s Week” update, but I’ve been updating the one I wrote last week. Now there are six sites/apps listed, with HTML anchors so it’s possible to click on a link at the top of the page and jump partway down the page. I think that’s cool! Yay organization!

Thank you for reading! I hope your week was okay!

#autisticBurnout #depression #disability #executiveDysfunction #mentalIllness #personalUpdate

12.01.2024 Been a while, haven’t done much art stuff lately

https://makertube.net/w/1sirsKJA46hQVn5gcmHKN6

A general statement:

Coming into the year, my goal was to address my credit card debt, especially given the political and economic uncertainty. By the end of this year, I will have reduced it by nearly 50%, which puts me in a much better position moving forward.

My desktop - an aging Dell - is slowly dying. It’s a Windows 11 machine, and has frequent hiccups and the occasional game crash. I need/want to replace it.

As someone with, uh… *certain* political and ethical views, I’m going to go open source as much as I can. Windows sucks, and I’m tired of spyware in the guise of questionably valuable AI.

To that end, I’m looking at desktops made by System76 and CachyOS (an Arch-based gaming Linux distribution).

As a companion to ^^^ I also want to get a NAS (Network Attached Storage for the non-nerdy). I’m tired (and, again, given the current climate, distrustful) of having a few mission critical things saved in Dropbox.

Put more simply: my goal is to have more control over *my* technology as I upgrade. I do still want to stream again, but I’m wary given my current PC instability. I’d much rather have a more stable foundation upon which to do it.

So, there you go. That’s my goal for 2026. It’s obviously dependent on other factors (health, whether or not the US is, you know, *still here*), but I need something to work towards and look forward to for my own mental health.

Thanks for coming to my TEDtalk 😂

#personalupdate #Tech

Likes 3 Good Things, an exercise in joy …

https://alexsirac.com/likes/43a7f42a4b/