One day I woke up from a nap because my cat was touching my arm. When I opened my eyes, I saw him open his mouth. He was meowing, but I couldn't hear him.
So I wrote this little poem, with a little sadness and a little acceptance. For all those sounds I love that are fading away as I become increasingly deaf...

My native language is Spanish so I put the original and then the translation.

Los pájaros se han ido
Los loros ya no juegan
en las ramas
La lluvia ya no canta
y el viento apenas sopla
Las risas de los niños
los perros del vecino
y la voz de ella
se alejan poco a poco
El silencio me devora
lentamente...

The birds have left
The parrots no longer play
on the branches
The rain no longer sings
and the wind barely blows
The children's laughter
the neighbor's dogs
and her voice
gradually fade away
The silence slowly devours me...

Perhaps the most painful loss is the loss of oneself, when time slowly steals away your gifts and treasures...

#deafness #hearingloss #deaf #silence #sordera #hipoacusia #silencio #actuallyautistic #autoimmune #poetry #poem

Hearing aids cost €2000+. They require appointments, fittings, adjustments.
For many people that's simply not accessible.

We make simpler tools. An iPhone app. A standalone device with four buttons. Not replacements for medical devices, but bridges for people who need help now.

Technology should lower barriers, not create them.

#a11y #HearingLoss #AssistiveTech

Update about my deafness, and it isn't good news.

I added my thoughts plus my recent audiogram to the top of my high frequency hearing loss piece from 2024, after my updated hearing test last weekend.
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#deafness #hearingloss #deaf #highfrequencyloss #hearingaids #InvisibleDisability #Disabled #Accessibility #AccessNeeds #LivedExperience #AssistiveTechnology #Audiology #HearingHealth #HearingTest #BilateralHearingLoss #HighFrequencyHearingLoss #ProgressiveHearingLoss
https://carasutra.com/2024/12/being-deaf-high-frequency-hearing-loss-me/

RE: https://digitalcourage.social/@doofeohren/116000209083617977

I did write a little something about #hearingloss (in German).

Lilly Partners with Seamless Therapeutics

Eli Lilly enters a potential USD 1 billion alliance with Seamless Therapeutics. The collaboration focuses on gene editing technology for hearing disorders. This agreement expands Lilly's genetic medicine portfolio and development pipeline.

#biotech #genetics #hearingloss #lifescience

I’ve been deaf since childhood, only hearing the world properly for the first time in my 40s.

I wrote about my high frequency hearing loss, and how specialist hearing aids changed my life.

https://carasutra.com/2024/12/being-deaf-high-frequency-hearing-loss-me/

#Deaf #HearingLoss #Disability #DisabilityVoices #LifeUnscripted
https://carasutra.com/2024/12/being-deaf-high-frequency-hearing-loss-me/

Brilliant #TedX talk by Gael Hannan about the dirty secret that all of us who have #HearingLoss or are #deaf are guilty of frequently doing…we bluff.

But why? We want people to think we understand them, we don’t want to be rude…but in doing so we let them and our selves down.

Good communication requires honesty. We have to advocate for our selves and explain when we need help. Easier said than done. But this was the nudge I needed to continue working on this.

https://www.youtube.com/watch?v=Xk2WGDXyKRI

RE: https://digitalcourage.social/@doofeohren/115900698583251083

A new article by me about #hearingloss (in German)