Stiff-Person Spectrum Disorders are rare autoimmune conditions that cause muscle stiffness, painful spasms, and exaggerated startle responses. Early diagnosis matters. 💙

#SPSD #AutoimmuneNeurology #RareDisease #Telehealth #Neurology

Day 32 of me relearning how to walk! I stepped foot on the treadmill for the first time.

I also give some tips on how to incorporate this into your rehabilitation routine, if you are also relearning how to walk!

#Disabled
#RareDisease

https://youtu.be/J4DZAVtJqX4?si=zWOSatX_8JmR-eOK

Day 32 of me relearning how to walk! I stepped foot on the treadmill for the first time.

I also give some tips on how to incorporate this into your rehabilitation routine, if you are also relearning how to walk!

#Disabled
#RareDisease

https://youtu.be/J4DZAVtJqX4?si=zWOSatX_8JmR-eOK

Doctors say that old people are full of regrets.

I'm trying not to have regrets.

I tend not to watch things like mountain climbing where abled bodied people achieve such bc I start to have feelings of regret.

I have a disability - autism - so I'm happy to watch productions where people overcome their conditions or disabilities.

#raredisease #pwd #disabled #blackdisabled #blackpwd #neurodivergent #blackneurodivergent #blackautistic #blackmastodon

“The growing role of parents as advocates and innovators, the case for a national rare disease champion, and why a more joined-up approach across government, regulators, industry and charities is essential to delivering faster diagnoses and access to life-changing therapies.”

#RareDiseaseDay #raredisease #chronicillness

https://pca.st/episode/cb7574f5-dd62-41ba-986d-686370acc4d6

Sonntag…
TAG 3 der Kennedy’s Disease International Conference
February 27 - March 2 in Orlando / Florida

Sehr informative Veranstaltung.
Positive Neuigkeiten.
Austausch.
Stay strong! You are not alone!

More Info here:
https://kennedysdisease.org/

#kennedysdisease
#sbmaTypKennedy
#raredisease
#raisingawareness