I was just reminded that today it is two years ago I left the hospital following a bladder removal and receiving my #ostomy.

I could barely walk at the time, and had no idea if I could ever get used to that bag on my stomach.

It was not two weeks ago that during a 6km “quick” walk, my wife had to ask if I could please walk a little slower as she had a hard time keeping up 🫣
The bag and taking care of the ostomy is so natural now, I don’t even think about it!

#urostoma #ostomates

Current status: Relaxing by the window, sipping stool softener, and wearing a dress. Truly living the dream.

This week's adventure is recovering from a twofer surgery (number 9 since 2020), to repair some consequences of the last #cancer surgery in Feb/2024.

The softball size hernia and tennis ball size hydroseal I have been living with for the last year-ish seem to be on the mend ("your tummy is flat again!" -my lovely bride).

Oscar (my #ostomy), is back to making inappropriate noises and so the docs are advancing me to semi-solid foods today. After the ileus (and subsequent NG tube), last time I pushed back on the team and slowed them down to avoid a repeat.

Today's goal is to shower with actual warm water - very exciting.

If things continue as they have, Frankie the Foley should come out tomorrow and home Tuesday to start mentally and physically preparing for three weeks of radiation to try and shrink the pelvic tumors first week of July.

#CancerSucks #FuckCancer

TIL: I am supposed to use my bed bags for more than one night.

#urostomy #ostomy

As we head into my birthday tomorrow, I feel it’s fitting to share that I have a featured article in the Ostomy Canada Society magazine’s #Fall2024 edition!

I was asked to share my #BladderCancer &#Urostomy experience with my fellow Canadian #ostomates. Without my #ostomy, I would not be alive to see 49. I might now have lived to see 41 even. ...

Hi, I'm Maeve, a disabled Transgender woman and Type 1 diabetic who almost died two weeks ago.

My bowel burst open and I needed surgery to save my life. This left me with an ostomy port in my stomach.

I need help affording medical supplies and medical bills while I recover.

375/800

Please Donate or Boost! I really could use all the help I can get!

https://gofund.me/d62f29a9

You can also send money via PayPal if you prefer.

https://paypal.me/nighttimeapp

Please help if you can!

#transcrowdfund #disabilitycrowdfund
#mutualaid #MutualAidRequest #ostomy

EDIT: I have made a new post with my GoFundMe in it, it is pinned to my profile. Please boost and/or donate if you are able! (This post has been updated with my GoFundMe link)

https://gofund.me/82719fec

I need your help! Please Donate or Boost!

A week ago I had emergency surgery due to a bowel perforation caused by diverticulitis.

I almost died.

Now, I am recovering from abdominal surgery, with an ostomy port on my stomach.

I need a lot of special medical supplies for the next three months. Things that are not covered by my insurance: Flushable wipes, gloves, OTC pain meds, Antibacterial soap/gels, transportation, waterproof bandages, sweat pants, and slide on shoes.

Please Donate or Boost! I'm trying to get enough money to cover all my medical needs for the next three months.

#mutualaid #transcrowdfund #DiabetesTyp1 #ostomy