Went out to cut my lawn with my long-handled shears, because it's quieter than a lawnmower, #ActuallyAutistic

Managed about 1 metre square before my thumbs gave out! :D #EDSLife

(This happens every year, and I get gradually stronger and stronger in the thumbs over the summer, and then lose it all again over the winter.)

My daughter is an HEDS warrior. So wonderful to finally have this seen on such a big platform. #edslife #ehlersdanlossyndrome

https://www.cnn.com/2022/12/24/health/hypermobile-ehlers-danlos-syndrome-health-hnk-spc-dst-intl/index.html

"How's your depression and anxiety?"
- "I don't have those."
"You don't?"
-"No..?"

"Okay, how's the diabetes?"
- "I don't have diabetes either."
"We should check your blood sugar levels".
- "No, I'm here for my sleep apnea."

"Oh right... How's dieting & losing weight going then?"
- "It's not".
"Why not?"
- "because I can barely eat or exercise as it is. Keeping my body nourished is the challenge here."

Actual conversation just now.
#EDSlife #Ableism #SleepApnea

// two little dogs on the bed //

The fluffy kids don't seem to mind the days in bed (#EDSlife) especially now that it is cold, and the bedroom is warmer with our 400 watt infra red panel, we prefer it here. Guess we're sort of hibernating until spring 😊

Here's a picture of them snoozing with me:

People who've got their life together: "we're setting up the Christmas tree! 🎄⭐️"

Me, obviously autistic and disabled in a messy house because I can't cope and nobody helps with anything: "I'M NOT ADDING MORE CLUTTER!"

#ActuallyAutistic #Disability #EDSlife

// Picture of rainbow wheels //

Going to work tomorrow with the new #wheelchair, looking forward to it, curious if all will go as expected.

Should I add the rainbow colors to the wheels like I did with the old #Ottobock?

#WheelchairLife #EDSlife #QuickieArgon #Rainbow #RainbowWheels

// new wheelchair//

I've got my new wheels!

The improvements include higher push bars so my partner can push when needed, a fully formed back rest with SI-support, ergonomic, flat push rims with grip on top, and just the right size, my previous chair was way too big! 🌻

#WheelchairLife #Wheelchair #EDSlife #QuickieArgon #Disability #EhlersDanlos

// picture of a tiny dog //

Sleeping terribly since daylight saving time. (That useless and confusing moment the clock stops making sense for 4 weeks straight)

I've put my 8kg heavy blanket on my bed to see if that helps me sleep, so I don't have to lie there and look at the inside of my eyelids until at least 3am 🤷🏻‍♀️

Tips to sleep deeper are welcome!!
I have almost no deep sleep 😩☠️

#Insomnia #HeavyBlanket #Dog #Chihuahua #Sleep #EDSlife #DaylightSavingTime #CantSleep #DeepSleep