I’ve been silent for awhile, the extreme isolation, struggling to keep myself afloat and my child alive has literally broke me. My child recently turned 9. I’d like to say there was a celebration. Yet, it was just us at home struggling to get through the day.

There is no support system for chronically ill, disabled parents caring for disabled children who have chronic, complex medical conditions. We are either forced to tough it out while living in eternal isolation, or fear death by allowing caregivers in our home who couldn’t give a shit that their Covid exposure risk could literally kill us.

The ongoing abuse I’ve witnessed my child experience from structural ableism and medical providers. The weight of it all is crushing us, and there’s no one to hold unto, there’s no support network. It’s obvious abled folx and society would rather we just rot isolated indefinitely, ostracized, alone.
#disabled #DisabledParenting #ableism #chronicpain #covid #n95 #pandemic #pandemicparenting #isolation #exclusion #gaslighting #medicalgaslighting #Care #collective #CovidIsntOver #WearAMask #savedisabledlives #eugenics #COVID19 #KeepMasksInHealtchare #respirators #chronicillness #spoonie #crip #disabilityindustrialcomplex