I’ve been predominantly bedridden for the last few weeks. My long covid symptoms continue to worsen. The fact that many abled folx refuse to do the simplest steps to ensure disabled survival is a celebration of eugenics and abled supremacy. I have to care for and keep my disabled child alive. Yet, I can barely care for myself. Simple tasks like eating, brushing my teeth, and getting dressed have become a chore. Whenever I mention that I have LC to non-Covid cautious folx they always find it “ironic” since I’ve been home isolating, wearing N95 masks, and only going out when necessary since the beginning of the ongoing pandemic. It’s as if it’s a way for folx to affirm their “survival of the fittest” ableist values. As mask bans become celebrated who can we count on? At this point, we can’t even receive safe medically necessary care. I’m grateful for having home medical suction, oxygen and seizure rescue meds to save my child’s life, and avoid reinfection from another traumatic AMR/ER experience. This is disabled life, this is abandonment.
I’m searching for community and collective care. If others have resources or suggestions I’d love to hear. As a yt, cis, housed disabled family, I realize we have a huge amount of privilege to dismantle. #maskban #ableism #AbledSupremacy #disabled #LongCovid #stillCOVIDing #MaskUp #eugenics #MedicalIndustrialComplex #isolation #COVID19

I just left a remote Long Covid support group that was advocating for dropping Covid mitigations, and insinuating that folx were being "too sensitive" for being frightened about catching Covid again.
One participant stated that subsequent
Covid infections didn't worsen their symptoms, and that isolating forever was ridiculous. I went off about abled supremacy and eugenics, and that disabled folx such as my child who cannot mask require others to mask to save their lives. I will never support anyone who has long covid and refuses to be covid cautious. I have observed an extensive amount of ableist exclusion in Covid groups towards disabled children, especially those who have chronic, complex medical conditions. We mask for collective care, love and solidarity, we isolate to protect ourselves and our community. #ableism #abledsupremacy #longcovid #disabledparenting #stillcoviding #mask #LongCovid #isolation #disabled

I envision myself in the streets fighting for liberation for Palestine, Sudan, Congo, Haiti, Hawaii, Turtle Island and the global South. As a yt, cis, housed person, I must work to dismantle the ongoing genocide of settler colonialism.
As a disabled parent 24/7 caring for a disabled child, who has chronic, complex medical conditions, I am on a daily struggle to try to keep them stable from ongoing medical crises. The isolation of a never ending pandemic, and societal enforced abled supremacy, create a dichotomy where I must choose between activism or keeping my child alive. Please check societal enforced abled standards of “normalcy “. Please no pity porn, we are a strong disability joy family. #AbledSupremacy #ableism #disabled #DisabilityJustice #abledstandardsofnormalcy

If your anti-ableist, still coviding activism isn’t centering disabled children then you are doing a shitty job. Disabled children who have chronic, complex medical conditions cannot mask, and need safe access to care, support and community. Yet, still coviding folx continue to exclude and censor this community, essentially committing the same eugenics and ableism they purport to be against. #ableism #AbledSupremacy #eugenics #covid #AntiAbleism #MaskUp #stillcoviding2024 #COVID19 #disabled #DisabledParenting

Abled supremacy is a cornerstone of white supremacy and settler colonialism. They do not exist separately, it’s the interconnectedness that keeps the wheels of capitalism, genocide, and the medical industrial complex churning. Dismantling systems of oppression must be linked through radical intersectionality. We cannot have a free society with for profit medical care, built on disabled death and abuse. “doctors” often police access to care, and support objectifying disabled bodies for “research purposes”. Dismantling the inherent ableist power dynamics that medical professionals are indoctrinated with takes a lifetime of unlearning, and advocating against. Listen and learn from disabled folx, especially disabled Black and Brown communities. #COVID19 #intersectionality #abledsupremacy #anticapitalism #ableism #WearAMask #MedicalIndustrialComplex #healthSupremacy

My disabled child was denied life saving medical supplies for a month and a half due to my refusal to take her to unmasked appointments for care. They have an upper airway restriction and cannot safely mask. This is eugenics and abled supremacy at work. Dismantle the MIC. #ableism #AbledSupremacy #MedicalIndustrialComplex #disabled #disabledactivistparent #maskmandates #COVID19 #MaskUp

Everytime, I walk out the door, I put on my anti-ableist activist hat. Abled supremacy is an active form of exclusionary hate. It’s easier to stay indoors isolated for eternity. #AntiAbleism #cripfamily #AbledSupremacy #disability #DisabilityJustice #MaskUp

I am on my 2nd shingles infection in just 4 months, and just got over pleurisy. It’s a big deal to get out of my pj’s due to constant body aches, migraines, insomnia, anxiety and depression. Im a 24/7 caregiver to my lovely disabled child. My gaslighting Dr thinks it’s early peri-menopause symptoms, and encourages home yoga. The long covid clinic doesn’t do shit. I realize my pains are insignificant compared to the ongoing genocide Gazans are facing. #LongCovid #MaskUp #disabled #AbledSupremacy