There’s a ton of overlap between the Covid Cautious & Chronic Illness communities because people living with chronic illness don’t have the luxury of ignoring the pandemic.

They know what a Covid infection will do to their precarious health.

so when the rest of the world decided to bury their heads in the sand and rush ‘back to normal’, we got left behind.
Stuck bearing the burden of knowing that the pandemic isn’t over.

That every day people are dying or becoming disabled.

That each Covid infection is playing Russian Roulette with disability and eventually, your number will be up.

There’s a significant mental toll that occurs when you are living in a different reality than the rest of the world.

People think we’re isolated and lonely because we’re often housebound and unable to do the activities we used to do, but they never consider the loneliness that comes from refusing to live in denial.

From knowing the danger everyone is in and being powerless to stop it.

All of these factors make maintaining a baseline all the more important, but it’s a delicate balance. Every thing we do is a cost/benefit analysis. We have to consider how much energy it will take. Do we have enough time to recover afterward? Is there a more disability friendly alternative?

The executive functioning required to make these decisions is considerable, and ironically also has a negative impact on our baseline. It’s exhausting having to be on high alert all the time. Unfortunately the alternative, throwing caution to the wind, is far more dangerous to our health.

https://www.disabledginger.com/p/maintaining-a-baseline-means-everything

#chronicillness #longcovid #covidcaution #covidisnotover #covidisairborne #disability #ableism

Maintaining a Baseline Means Everything When You're Chronically Ill

So why is it so hard to do? And how can we make it a bit easier?

The Disabled Ginger

Egal ob, wie aktuell #Influenza, #Corona #SARSCoV2 oder #RSV, oder #Masern, #Röteln, #Mumps, #Windpocken, #Diphterie, #Typhus, etc.

Impfungen schützen vor schweren Verläufen und Tod! Sie senken das Risiko auf Langzeitschäden und Spätfolgen!

Also bitte: achtet auf euren Impfstatus! ♥

Anmerkung:
Anmerkung: sehr zu empfehlen ist hier die Hilfe von https://safeairdocs.de/, die euch sowohl Arztpraxen für #CovidCaution People vermitteln als auch #Impfstellen!

Safe Air Docs

Post (from X):

The Berkeley Repertory Theater (Bay Area, CA) has mandatory masked events on Sundays and Tuesdays.

This is inclusiveness. This is a community care.

Vulnerable people deserve to experience life, too.

Alt text for image: Photo of the audience in a full theater with every patron masked

From: @covidcaution
https://bird.makeup/users/covidcaution/statuses/1835578873586831819

#CovidCaution
@longcovid

Covid Caution KP.2 + KP.3 + KP.3.1.1. + LB.1

The Berkeley Repertory Theatre (Bay Area, CA) has mandatory masked events on Sundays and Tuesdays. This is inclusiveness. This is community care. Vulnerable people deserve to experience life, too.

I’ve been feeling a lot of grief this weekend after reading about Professor Amit Patel - a nationally recognized doctor & expert in the rare disease HLH - who died in hospital when medical staff refused to acknowledge his expertise in his own condition.

Many disabled and chronically ill individuals know how dangerous hospitals can be - but reading about a doctor (who had a spouse who was also a physician advocating for him) being unable to get the care he needed to stay alive? It’s terrifying.

I wrote about his death, my own experiences with medical trauma and the need for a safer system for all.

https://open.substack.com/pub/disabledginger/p/prof-amit-patel-death?r=19dk2e&utm_medium=ios

#Disability #ChronicIllness #RareDisease #Spoonies #Ableism #gaslighting #HLH #MedicalTrauma #MedicalGaslighting #Discrimination #DisabilityRights #CovidIsNotOver #CovidCaution

Professor & Expert in Rare Disease HLH Dies after Medical Staff Ignore his Expertise

A look at the death of Prof Amit Patel and the very real problem of medical gaslighting, neglect, discrimination and dismissal.

The Disabled Ginger

For now we keep our #COVIDcaution up, because it's too risky. My lungs are already in very deep trouble. My partner is too well informed to want to take the risk. Plus, and this is the killer thought, should i get sick and need medical attention, hospitals are no longer an option.

On the other hand, in some ways we simply delegate the risk onto others, for instance when online shopping, and that feels very wrong too.

Are there any covid cautious people in #wellingtonnz
This is an awkward, also during a chronic illness flare, hello I wanna date maybe, post.

Because I can't really go anywhere or do much because I'm almost always so unwell, and people aren't masking during an ongoing pandemic, I can't really meet anyone. So this is kind of a shout hello into the void.

#wellingtonnz #covidcaution #pandemicprecautions #AotearoaNZ #aotearoanzdating #datingnz #chronicallyilldatingnz #chronicallyill #permanentlysick #lonely #leftistdating #leftist