Show threadMast0b1tMar 21, 2024

@Ric You, too? 🙁☹️

Here, this is a worthwhile bookmark:
https://batemanhornecenter.org

The #BatemanHorneCenter specializes in #chronicillnesses like #fibromyalgia, #LongCOVID, #MECFS, #Lupus, and more.

They offer #free group sessions with a clinical #psychologist who is also #disabled. I attended two this year and it was way better than I had expected. I will attend at least one more this year.

Bateman Horne Center

Improving the lives impacted by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), post-viral syndromes, and related comorbidities.

Bateman Horne Center
Colin-Roy HunterDec 24, 2022
Trying to find out more about #HUA or #HoursOfUprightActivity. There was nothing as far as I could see on #MEpedia and the #MEAssociation search was not refined enough. Most of the references I came across refer to #BatemanHorneCenter in USA. Below are three images of the aforementioned’s slides shared on #MEAction .net
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #pwME
Show threadMaya Lindemann, RNNov 18, 2022
@bookwyrm
it’s such a hard space to navigate I’m happy to help!
Here’s a link to MEAction #ME #MECFS #LongCovid advocacy group https://www.meaction.net/learn/what-is-me/
I’m not sure who’s on mastodon yet, #workwell #putrinolab #LongCOVIDPhysio #batemanhornecenter are great #PEM resources.
https://longcovid.physio/post-exertional-malaise
Here’s a ppt on #PEM it’s fairly technical and medical
https://batemanhornecenter.org/wp-content/uploads/filebase/providers/PEM-Lecture-Slides-ECHO-v4-5_17_2022.pdf
What is ME?

What is ME? Myalgic encephalomyelitis (ME) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a complex chronic disease that presents with symptoms in multiple body systems.  ME is a neurological disease according to the World Health Organization.  Susceptibility may be genetic, but the disease is triggered by infection in the majority of patients.  ME may be … What is ME? Read More »

#MEAction Network