Reposting my #Introduction after server move!
I'm a #Black #neurodivergent (#ADHD) #disabled ace woman in her late 30's based in the UK. I have a #chronicillness (#MECFS)- former nurse but housebound now. I am extremely concerned about the way our society is going so I spend my time reading, doing serious #philosophy & trying to build #community despite having severe social anxiety. I'm also a dedicated longtime #Buddhist practitioner. I study #Japanese as a hobby (& yes, I do like #anime!)
@annedraya Good to meet you. I switched servers recently, too.
Also #chronicillness here, something that eludes diagnosis. I've been reading up on #MECFS and wondering if a doctor would listen to me if I asked about that as a possibility.
@bookwyrm @annedraya if you’re curious about #mecfs I recommend looking through #meaction & #openmedicinefoundation they have good info and resources.
The key feature is #PostExertionalMalaise #PEM an often delayed worsening of symptoms after any type of exertion. Many doctors still don’t know about #mecfs or are dismissive. Their knowledge base on #PEM is a good indication if they know what they’re dealing with. NO GRADED EXERCISE!
#MedMastodon #chronicillness
@MayaL Thank you so much! I will explore those hashtags.
I'm no expert, but the description #PEM #PostExertionalMalaise resonates with my experience. But I don't know. I want to read up enough to know if #ME/CFS worth asking about, because getting any kind of answers is always such a battle, I wonder if it's worth all the energy to even try.
What's the deal with graded exercise? (please excuse my ignorance)
What is ME? Myalgic encephalomyelitis (ME) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a complex chronic disease that presents with symptoms in multiple body systems. ME is a neurological disease according to the World Health Organization. Susceptibility may be genetic, but the disease is triggered by infection in the majority of patients. ME may be … What is ME? Read More »
@MayaL @bookwyrm I’ve been wondering about how people feel around here about boosting one’s own replies to someone else’s post. It makes sense to me; otherwise, how do you let other people see what you spent time writing?
On Twitter, I would often RT replies I’d made and it seemed like an effective way to accomplish that.
Any thoughts on this?
P.S. I will self-boost this reply, too!
andrea patrice
EEBL
Maya Lindemann, RN
Ed Suominen