really want to write a blog about how 'wanting to help' and 'actually being helpful' are 2 very different things, and when you are disabled, you REALLY REALLY NEED people to understand this! Like, if I say no thanks, then I'm not being mean or touchy. I'm letting you know it isn't helpful! Only my brain isn't working. So I'm posting this to remind me to do it another day. #NEISvoid #disability #fatigue #PoTS #hypermobility

I love my keyring cards. It's like having an easy-read, personalised book that summarizes my disability and needs - so I can quickly, effectively, and with minimum energy, let people know the essentials in a way that makes them smile, understand and accept.
See the full range at
https://stickmancommunications.co.uk/product-category/keyring-cards-product-type/
#Hypermobility #EDS #Pain #AutonomicDysfunction #Fatigue #DisabilityAwareness #DisabilityAcceptance #MentalHealth #

At last I'm well enough to re-start work on a professional education webinar series on supporting patients with long term conditions! So, patients, What do you think of this slide specifically on challenges we face prepping for an appt? Do you relate? Anything major missing?

Well, it's first day back at work after the Christmas break - but the fact is my #fatigue and #BrainFog is off the chart. So rather than going by my planned to do list, I'm posting this, then heading for a lie down.

First proper frost of the year, and I'd left my wheelchair cushion in the car...only this time, in the battle of #FrozenCheeks, I won! Frozen cushion placed on heated car seat until arrival at office = happy cheeks.