MamaTNov 25, 2022
Adam

Highlights Baroness Brinton speaking at the Long Covid debate in the House of Lords 17 Nov 2022.

- 1 in 22 will have a major cardiac event within 12 months after infection
- 1 in 5 will get Long Covid
- The more often you get Covid the more likely you are to get Long Covid

#MECFS #CFS #MyalgicE #PwME #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #MECFSAwareness #LongCovid #Covid19

Nov 24, 2022 at 9:49pmWeb
Show threadMaya Lindemann, RNNov 24, 2022

@brokenbattery this speech is so good. Preach woman, preach! Ending is also perfect. Absolutely absurd to have psychosomatic studies when we now know so much physiological damage is occurring (and have for a long time)

Thanks for sharing #LongCovid #pwME

Show threadKatieAsNov 24, 2022
@brokenbattery 1 in 22 of all covid infections or 1 in 22 or those with some form of Long Covid, for the cardiac event? Either way why isn’t this front page news every day?
Show threadKimNov 24, 2022
@KatieAs @brokenbattery Yes that’s the first clarification I though of too. Big difference if 1 in 22 Covid pts will have cardiac arrest in 12 months. 😳
Show threadKatieAsNov 26, 2022
@kimlango @brokenbattery That seems to be what they are saying which is mind-blowing. The gap between reality and how people are behaving (and being advised to behave) is sending me spare. I know you feel the same. I just want to scream at my family members to wear masks at work or socially whenever possible, and good masks at that, but it has become unacceptable to say anything because… “look around, no-one else thinks that”.
Show threadKimNov 26, 2022
@KatieAs @brokenbattery It’s like they’ve given up and will let the onslaught continue to destroy the healthcare system, and their own citizens. When this many ppl behave this way, sadly it eventually finds us, and all medically vulnerable ppl. As a disability family this causes me great grief. 😞
Show threadKatieAsNov 26, 2022
@kimlango @brokenbattery yes, me too. It’s devastating for everyone, but especially those of us who are already begging to be kept safe.
Show threadAdamNov 26, 2022

@kimlango @KatieAs

Its all Covid infections.

"the incidence of serious cardiac and cardiovascular problems was 4% higher in the 12 months after people were diagnosed with COVID-19 compared to those who were not infected."

https://www.npr.org/sections/health-shots/2022/03/05/1084413347/for-some-patients-cardiovascular-problems-persist-long-after-covid

For some patients, cardiovascular problems persist long after COVID

After recovering from their initial illness, COVID-19 patients can sometimes suffer serious complications such as heart attacks and strokes — even up to a year later. New research quantifies the risk.

NPR
Show threadKatieAsNov 30, 2022
@brokenbattery @kimlango @ahimsa_pdx the article says “The study found that, among those who got sick but were not hospitalized, 56 out of every 1,000 had a major adverse cardiovascular event — namely heart attack and stroke — in the 12 months following an infection”. Which seems different to 1 in 22. Maybe the 1 in 22 includes the hospitalised and they have most of the risk? I find all the stats very confusing but it’s not looking good.
Show threadAdamDec 1, 2022

@KatieAs @kimlango @ahimsa_pdx

I've not looked but someone posted this:

The 1 in 22 figure comes from https://www.nature.com/articles/s41591-022-01689-3 , secondary: https://www.npr.org/sections/health-shots/2022/03/05/1084413347/for-some-patients-cardiovascular-problems-persist-long-after-covid

1 in 22 ~= 4%. https://chaos.social/@manawyrm/109406912853081941

Long-term cardiovascular outcomes of COVID-19 - Nature Medicine

Individuals with COVID-19 are at increased long-term risk for a wide range of cardiovascular disorders, even for individuals who were not hospitalized during the acute phase of the infection.

Nature
Show threadKimDec 1, 2022
@brokenbattery @KatieAs @ahimsa_pdx
Thanks for finding this.
56 out of 1000 is 5.6% and 1 in 22 is 5.1% So basically 5% of ‘mild’ (non hospitalized) patients are having either a heart attack or stroke within 12 months of infection.
There’s no going back to the before times.
Show threadKatieAsDec 1, 2022
@kimlango @brokenbattery @ahimsa_pdx thank you both. When you write it out it does look right. Maths was never my strong point! It’s amazing isn’t it? Extrapolate this to worldwide, add in the lowered sperm count, the long covid numbers (which will overlap with the heart events, but not in all cases) and it’s looking pretty devastating for humankind. As if climate change wasn’t scary enough!
Show threadKatieAsDec 1, 2022
@kimlango @brokenbattery @ahimsa_pdx actually the heart events/damage might be a subset of the 1 in 5 with “long covid”. I think they mean all long term issues by that label, from a quick read. Also it’s not just heart attacks and stroke, it’s various other types of heart damage, atrial fibrillation etc as well.
Show threadKimDec 1, 2022
@KatieAs @brokenbattery @ahimsa_pdx@disabled.
I’m still holding out a small hope the coagulation & other negative effects are temporary in the body. It’s possible they may diminish with time. Some virus’ compounding effects decrease with time. EBV for example, significantly decreases the hosts immune system for 7 years but if the host can survive the onslaught, they end up with abnormally robust T cells. gotta hold on to something. 🤍
Show threadKatieAsDec 1, 2022
@kimlango @brokenbattery I’d never heard that about EBV. As someone with ME I wonder how that fits into illness trajectory. I actually felt my illness changed at year 7 and I developed POTS and have been declining gradually since (I’ll be at year 24 in a couple of months). It seems like people with ME have less microclots and I wonder if this is a result of time since initial infection, or just that it’s a different initial virus which has different modes of damage. So much to research!
Show threadAdamDec 1, 2022

@kimlango @KatieAs @ahimsa_pdx

The article about the paper states "Overall, the study found the incidence of serious cardiac and cardiovascular problems was 4% higher in the 12 months after people were diagnosed with COVID-19 compared to those who were not infected."

https://www.npr.org/sections/health-shots/2022/03/05/1084413347/for-some-patients-cardiovascular-problems-persist-long-after-covid

And 1 in 22 is 4.55%. sorry I don't have time to really dig into it further.

For some patients, cardiovascular problems persist long after COVID

After recovering from their initial illness, COVID-19 patients can sometimes suffer serious complications such as heart attacks and strokes — even up to a year later. New research quantifies the risk.

NPR
Show threadJames FoulgerDec 3, 2022
@KatieAs @brokenbattery @kimlango @ahimsa_pdx
Small sample size study but little mortality data exists.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5218818/
Mortality in Patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

There is a dearth of research examining mortality in individuals with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Some studies suggest there is an elevated risk of suicide and earlier mortality compared to national norms. However, ...

PubMed Central (PMC)
Show threadKatieAsDec 3, 2022
@foulger @brokenbattery @kimlango @ahimsa_pdx yes we also seem to have heart issues.
Show threadein kleines zNov 25, 2022
@brokenbattery This ist so scary.
Show threadNgati Pakeha KuiaNov 26, 2022
@brokenbattery Go the Baroness!
Show threadEEBLNov 26, 2022

@brokenbattery It's terrifying the scope of death and disability people are so eager to accept.

I'm the in the US, but we're facing broadly similar issues.