AdamNov 24, 2022

Highlights Baroness Brinton speaking at the Long Covid debate in the House of Lords 17 Nov 2022.

- 1 in 22 will have a major cardiac event within 12 months after infection
- 1 in 5 will get Long Covid
- The more often you get Covid the more likely you are to get Long Covid

#MECFS #CFS #MyalgicE #PwME #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #MECFSAwareness #LongCovid #Covid19

Show threadKatieAsNov 24, 2022
@brokenbattery 1 in 22 of all covid infections or 1 in 22 or those with some form of Long Covid, for the cardiac event? Either way why isn’t this front page news every day?
Show threadKimNov 24, 2022
@KatieAs @brokenbattery Yes that’s the first clarification I though of too. Big difference if 1 in 22 Covid pts will have cardiac arrest in 12 months. 😳
Show threadAdamNov 26, 2022

@kimlango @KatieAs

Its all Covid infections.

"the incidence of serious cardiac and cardiovascular problems was 4% higher in the 12 months after people were diagnosed with COVID-19 compared to those who were not infected."

https://www.npr.org/sections/health-shots/2022/03/05/1084413347/for-some-patients-cardiovascular-problems-persist-long-after-covid

For some patients, cardiovascular problems persist long after COVID

After recovering from their initial illness, COVID-19 patients can sometimes suffer serious complications such as heart attacks and strokes — even up to a year later. New research quantifies the risk.

NPR
Show threadKatieAsNov 30, 2022
@brokenbattery @kimlango @ahimsa_pdx the article says “The study found that, among those who got sick but were not hospitalized, 56 out of every 1,000 had a major adverse cardiovascular event — namely heart attack and stroke — in the 12 months following an infection”. Which seems different to 1 in 22. Maybe the 1 in 22 includes the hospitalised and they have most of the risk? I find all the stats very confusing but it’s not looking good.
Show threadAdamDec 1, 2022

@KatieAs @kimlango @ahimsa_pdx

I've not looked but someone posted this:

The 1 in 22 figure comes from https://www.nature.com/articles/s41591-022-01689-3 , secondary: https://www.npr.org/sections/health-shots/2022/03/05/1084413347/for-some-patients-cardiovascular-problems-persist-long-after-covid

1 in 22 ~= 4%. https://chaos.social/@manawyrm/109406912853081941

Long-term cardiovascular outcomes of COVID-19 - Nature Medicine

Individuals with COVID-19 are at increased long-term risk for a wide range of cardiovascular disorders, even for individuals who were not hospitalized during the acute phase of the infection.

Nature
Show threadKimDec 1, 2022
@brokenbattery @KatieAs @ahimsa_pdx
Thanks for finding this.
56 out of 1000 is 5.6% and 1 in 22 is 5.1% So basically 5% of ‘mild’ (non hospitalized) patients are having either a heart attack or stroke within 12 months of infection.
There’s no going back to the before times.
Show threadKatieAs
@kimlango @brokenbattery @ahimsa_pdx thank you both. When you write it out it does look right. Maths was never my strong point! It’s amazing isn’t it? Extrapolate this to worldwide, add in the lowered sperm count, the long covid numbers (which will overlap with the heart events, but not in all cases) and it’s looking pretty devastating for humankind. As if climate change wasn’t scary enough!
Dec 1, 2022 at 4:40pmWeb
Show threadKatieAsDec 1, 2022
@kimlango @brokenbattery @ahimsa_pdx actually the heart events/damage might be a subset of the 1 in 5 with “long covid”. I think they mean all long term issues by that label, from a quick read. Also it’s not just heart attacks and stroke, it’s various other types of heart damage, atrial fibrillation etc as well.
Show threadKimDec 1, 2022
@KatieAs @brokenbattery @ahimsa_pdx@disabled.
I’m still holding out a small hope the coagulation & other negative effects are temporary in the body. It’s possible they may diminish with time. Some virus’ compounding effects decrease with time. EBV for example, significantly decreases the hosts immune system for 7 years but if the host can survive the onslaught, they end up with abnormally robust T cells. gotta hold on to something. 🤍
Show threadKatieAsDec 1, 2022
@kimlango @brokenbattery I’d never heard that about EBV. As someone with ME I wonder how that fits into illness trajectory. I actually felt my illness changed at year 7 and I developed POTS and have been declining gradually since (I’ll be at year 24 in a couple of months). It seems like people with ME have less microclots and I wonder if this is a result of time since initial infection, or just that it’s a different initial virus which has different modes of damage. So much to research!