Long Covid, ME/CVS, Lyme, POTS en Fibromyalgie patiënten vragen jullie hulp - Online petition

Not Recoverd Belgium en de patëntenverenigingen vragen om * Een gecoördineerde aanpak, gebaseerd op de laatste wetenschappelijke inzichten; * Betere kennis van multisysteemziekten bij huisartsen en specialisten, meer aandacht voor deze ziekten binnen de opleiding; * Het beter herkennen van PEM (inspanningsintolerantie of postexertionele malaise), MCAS (Mestcel Activatie Syndroom) en POTS (Posturaal Orthostatische Tachycardiesyndroom) en andere vormen van dysautonomie; * De oprichting van onafhan

openPetition

Tonight! (Mon 2nd Dec at 7pm #Irish time)
Free zoom support meeting for spouses/partners.
Zoom link in comments.
Open to those outside #Ireland

#LongCovid #NotRecovered

Via Long Covid Advocacy Ireland

Last week i entered year five of suffering from this illness.

I am so tired of being sick. I am so tired of being made to feel like this is somehow my fault. I am so tired of feeling like a failure. I am so tired of having no friends, no work, no future, no fun.

I am so tired.

No one seems to care, except my wonderful partner, who has to shoulder so so much of the care work, way too much.

#LongCovidAwarenessDay #StillAlive #LongCOVID #NotRecovered

"The sacrifice of bodies for the capitalist project was always going to catch up to us all eventually.

We were always in the line for the meat grinder, it’s just that others were first.

Safety, if you were ever lucky enough to feel it, was an illusion.

No one is safe until everyone is safe."

https://www.donotpanic.news/p/mass-disabling-event-denial

#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism

Mass Disabling Event Denial

Covid silence as UK disability numbers are revised upwards

¡Do Not Panic!

"it’s [...] no surprise that societies built on supremacist foundations and eugenicist tales of the strong conquering the weak are unable to look honestly at physical, bodily deterioration.
It’s no surprise that ableist societies are disabling themselves.
A genocidal mindset is coming home to roost.
The truth is our relative privilege as citizens of the imperial core could only ever last so long.
Our comfort and safety has always been traded off against out-groups and the exploited, both historically and in the present."

https://www.donotpanic.news/p/mass-disabling-event-denial

#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism

Mass Disabling Event Denial

Covid silence as UK disability numbers are revised upwards

¡Do Not Panic!

Solidarity with everyone who still wears a mask. Solidarity with everyone who has had friends and family turn their backs on them for being covid cautious. Solidarity with everyone who has Long-Covid and does all they can to make sure no-one else has to live through the daily difficulties we do. Solidarity to everyone fighting against ableism, eugenics, Social Darwinism and health supremacy. Solidarity to everyone who gets shouted at and abused for wearing a mask. Solidarity to everyone who keeps going despite the overwhelming hegemonic narrative that what we are living through is 'normal'. Solidarity to everyone sharing science and facts about how covid spreads and the dangers of covid. Solidarity with you.

#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism

This is such a comprehensive and informative summary of research, studies and information over the last year about the pandemic by @violetblue. It again shows how states, related institutions and politicians have totally failed, the danger of and damage caused by Covid, and how tragic it is that so many people are ignoring scientific reality. Thanks to @antiaall3s for making me aware of this and related pandemic roundups!

Link here:

https://www.patreon.com/posts/pandemic-roundup-95546410

#LongCovid #CovidIsNotOver #NotRecovered #MaskUp #CovidIsAirborne #Covid

Pandemic Roundup: 2023 year in review | Violet Blue

Patreon is empowering a new generation of creators. Support and engage with artists and creators as they live out their passions!

Patreon

I have never had short hair before, and always used to have my hair down, rarely tying it up. Over these last few years, whilst struggling with Long-Covid, I have tied my hair up for most of the time with me increasingly finding it difficult, due to pain and fatigue, to brush, wash and dry my hair. So now, thanks to my lovely partner, I have short hair for the first time!

#LongCovid #NotRecovered #ChronicallyIll #Spoons

That feeling when you feel like you've been poisoned and had someone put Adamantium into your body, weighing you down, but unlike Wolverine you don't heal! Similar to Wolverine in Logan then, I guess, if I carry on with my comparison.

#LongCovid #NotRecovered #ChronicallyIll #Wolverine #PEM #Spoons

I also really want to say after so many years of neglect, abuse, gas lighting, being ignored, by medical people and institutions and friends, family etc, I can only imagine there was and is mixed emotions, including frustration, maybe anger, alongside hope when suddenly more people started talking about and recognising the ME/CFS community, given the rise of Long-Covid. I am so thankful to the members of the ME/CFS community for your support, solidarity and also sharing of information, resources and tips with myself and other Long-Haulers based on your own experiences.

#ChronicIllness #MECFS #LongCovid #LongHaulers #NotRecovered #Disability #DisabilityJustice