Liebe #LongCovid Bubble,
vor 4 Jahren begann meine Odyssee mit einer Krankheit, die bis vor kurzem niemand kannte. Jetzt bin gesund.
Aber was bedeutet das, was ist geblieben und wie bin ich gesund geworden. Ich habe versucht, meine Erfahrungen und Entdeckungen irgendwie in ein Video zu pressen ❤️ vielleicht hilft es ja jemandem.
https://www.youtube.com/watch?v=_CGlyix80s8
New study on #mecfs
(16 March 2026)
"These findings support neuroinflammation as a key pathological feature of ME/CFS and highlight potential targets for anti-inflammatory therapeutic interventions.
The results advance understanding of ME/CFS pathophysiology and demonstrate the value of specialised neuroimaging techniques for detecting subtle but clinically meaningful brain alterations in this complex condition."
#LongCovid, #ME_CVS , #Lyme, #POTS en #Fibromyalgie patiënten vragen jullie hulp
Not Recoverd Belgium en de patëntenverenigingen vragen om * Een gecoördineerde aanpak, gebaseerd op de laatste wetenschappelijke inzichten; * Betere kennis van multisysteemziekten bij huisartsen en specialisten, meer aandacht voor deze ziekten binnen de opleiding; * Het beter herkennen van PEM (inspanningsintolerantie of postexertionele malaise), MCAS (Mestcel Activatie Syndroom) en POTS (Posturaal Orthostatische Tachycardiesyndroom) en andere vormen van dysautonomie; * De oprichting van onafhan
Tonight! (Mon 2nd Dec at 7pm #Irish time)
Free zoom support meeting for spouses/partners.
Zoom link in comments.
Open to those outside #Ireland
Via Long Covid Advocacy Ireland
Last week i entered year five of suffering from this illness.
I am so tired of being sick. I am so tired of being made to feel like this is somehow my fault. I am so tired of feeling like a failure. I am so tired of having no friends, no work, no future, no fun.
I am so tired.
No one seems to care, except my wonderful partner, who has to shoulder so so much of the care work, way too much.
"The sacrifice of bodies for the capitalist project was always going to catch up to us all eventually.
We were always in the line for the meat grinder, it’s just that others were first.
Safety, if you were ever lucky enough to feel it, was an illusion.
No one is safe until everyone is safe."
https://www.donotpanic.news/p/mass-disabling-event-denial
#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism
"it’s [...] no surprise that societies built on supremacist foundations and eugenicist tales of the strong conquering the weak are unable to look honestly at physical, bodily deterioration.
It’s no surprise that ableist societies are disabling themselves.
A genocidal mindset is coming home to roost.
The truth is our relative privilege as citizens of the imperial core could only ever last so long.
Our comfort and safety has always been traded off against out-groups and the exploited, both historically and in the present."
https://www.donotpanic.news/p/mass-disabling-event-denial
#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism
Solidarity with everyone who still wears a mask. Solidarity with everyone who has had friends and family turn their backs on them for being covid cautious. Solidarity with everyone who has Long-Covid and does all they can to make sure no-one else has to live through the daily difficulties we do. Solidarity to everyone fighting against ableism, eugenics, Social Darwinism and health supremacy. Solidarity to everyone who gets shouted at and abused for wearing a mask. Solidarity to everyone who keeps going despite the overwhelming hegemonic narrative that what we are living through is 'normal'. Solidarity to everyone sharing science and facts about how covid spreads and the dangers of covid. Solidarity with you.
#CovidIsNotOver #CovidIsAirborne #WearAMask #MaskUp #LongCovid #NotRecovered #Pandemic #AntiAbleism
This is such a comprehensive and informative summary of research, studies and information over the last year about the pandemic by @violetblue. It again shows how states, related institutions and politicians have totally failed, the danger of and damage caused by Covid, and how tragic it is that so many people are ignoring scientific reality. Thanks to @antiaall3s for making me aware of this and related pandemic roundups!
Link here:
https://www.patreon.com/posts/pandemic-roundup-95546410
#LongCovid #CovidIsNotOver #NotRecovered #MaskUp #CovidIsAirborne #Covid
I have never had short hair before, and always used to have my hair down, rarely tying it up. Over these last few years, whilst struggling with Long-Covid, I have tied my hair up for most of the time with me increasingly finding it difficult, due to pain and fatigue, to brush, wash and dry my hair. So now, thanks to my lovely partner, I have short hair for the first time!
Marcus C. J. Hartmann
Julia
Bass #Antifa #EcoHumanist
Over There
Anti. 🐘
Radical Communal Care
Trekhausen (she/her)