"Trial By Error: A New Cookbook for People with Chronic Illness" By David Tuller

https://virology.ws/2025/11/19/trial-by-error-a-new-cookbook-for-people-with-chronic-illness/

[Rachel Riggs ... diagnoses include myalgic encephalomyelitis (ME), mast cell activation syndrome and postural orthostatic tachycardia syndrome]

#chronicillness #MEcfs #POTS #MCAS @mecfs

Reminder: the Bateman Horne Center has online support groups twice a month for folks with with ME/CFS, Fibromyalgia, Long COVID, and co-existing conditions.

Next session is Tuesday, Dec. 9, and the topic is "Freedom from Thinking Traps Amidst Chronic Disease"

https://batemanhornecenter.org/event/online-support-group-108/

Advance registration required

@mecfs
@longcovid
@pots

#MEcfs #LongCovid #POTS #Fibromyalgia #ChronicIllness #NEISvoid #Support

I've been sick for almost a month now. With my histamine issues it's possible that a lot of this is weather vs sinuses but the cough is unlike anything I've ever had... At times I cough myself into a grey-out. Had a visit to the ER during this and x-ray and labs looked OK and they seemed to not be concerned but at what point does this become something that is concerning? Sadly whenever that point arrives it'll be a referral to a specialist that I can't afford and my insurance won't cover... And I'm not sure if I'll even have insurance next year (I'm procrastinating logging on to the marketplace due to anxiety of the whole situation). I honestly don't know how much longer I can keep this up.

Anyone else had ongoing cough and congestion like this?

#ChronicIllness #POTS #EhlersDanlos #HealthCare

How is it that so many of the women whose channels I watch on YouTube also have #POTS ??

Here's a big duh moment I had the other day... You know that warning every conductor gives when a choir or orchestra is standing on bleachers, to not lock your knees? That's more than likely an EDS and/or POTS thing. Hyperextended knees meet floppy veins.

It's common enough that every conductor has seen it. So tell me again how rare these conditions are?

"Systematic literature review: treatment of postural orthostatic tachycardia syndrome (POTS)" ["with a special focus on POTS therapy in children and people with ME/CFS."]

Free fulltext:
https://link.springer.com/article/10.1007/s10286-025-01172-2

#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

New:
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept

Free
https://www.scienceopen.com/hosted-document?doi=10.13169/intljofdissocjus.5.2.0001

Sympathetic exploration of topic

#EnergyLimitingConditions #Spoonie #Fatigue #chronicillness #Spoonies #ELCI @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid @longcovid #POTS @pots

"Medical Gaslighting"

https://www.youtube.com/watch?v=Kwp_CI7ZgLI

A light-hearted 3-minute song with a serious message, with which many may sadly be able to relate

#MedicalGaslighting #chronicillness #hiddenillness
#invisibleillness #Gaslighting #ChronicallyIll #ChronicPain @mecfs
#MEcfs @longcovid
#LongCovid #POTS @pots