Mastodawn

Har innteke horisontalen dei siste vekene. 🛏️

Høyrer på lydbøker, radio, retrogamar dei enklaste spela på handholdten, kosar med pusen og ventar på å kunne hekle _alle_ prosjekta om x antal veker/månadar.

Over eit halvt år i strekk med å kunne sitje oppreist heile dagen alle dagane frå i fjor haust til medio mai i år gjev godt håp for framtida.

#pwME #POTS

Bloo (they/she) 🍓 🏳️‍⚧️ 🍉20h ago

Does anyone else really hate how on a flare up day sometimes it just feels like... Something is badly wrong that you cant quite put your finger on? Your body feels tired but you’re not sleepy. You feel hungry, but when you eat your tummy complains at you. Standing feels hard, so you move and that feels too much. You wanna distract yourself, but you feel too overwhelmed and brain fogged to do anything other than sit there stewing in overwhelm? #POTS #Disability

Ahimsa 1d ago

New blog post from Bateman Horne Center talking about orthostatic intolerance. Just because you don't have POTS doesn't mean you don't have some other form of orthostatic intolerance.

https://batemanhornecenter.org/when_its_not_pots/

@mecfs @longcovid

#MEcfs #LongCovid #POTS #OrthostaticIntolerance #Dysautonomia

Eleanor Fielding 1d ago

#ThereForME @[email protected] @[email protected] #ME #Chronicillness #LC #PEM #POTS #LivesWeCannotLive #MissingMillions @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected]

Mark Leeds 1d ago

"Additionally, when looking for therapies that may help with postural orthostatic tachycardia syndrome, a patient with BIND may want to consider focusing on therapies that help them with benzodiazepine withdrawal symptoms." https://lttr.ai/AruYq

#ProtractedWithdrawal #POTS #BIND

Do Benzos Cause POTS? Benzodiazepine Withdrawal and Dysautonomia | Dr.

Do benzodiazepines cause POTS (postural orthostatic tachycardia syndrome)? The connection between benzo withdrawal and autonomic nervous system dysfunction.

Dr. Leeds

David Anthony 2d ago

I did go out this morning and buy some plants though, I bought a Phoenix Canariensis, a Gaillardia Grandiflora and mix colour geraniums which I put it Jo's mums strawberry planter which has been out of use for several years. I also sowed some seeds I found... Nothing ventured nothing gained ♥️
#PhoenixCanariensis #GaillardiaGrandiflora #geraniums #gardening #garden #pots #plants #nakedgardening

PRoe 3d ago

These 2 Wires…

2 little wires on a filthy 66 block... These 2 wires were running the "Over-head Paging" system. You know at the grocery store when the voice interrupts the music to say "Bakery dial 100". That system. For this Grocery store which shall remain unnamed in North East Philadelphia. For at least 10 years... And another 10, because all we did was splice on at this 66 block point... 2 wires, dusty, corroded, found only by necessity on a contract they called after the other crew failed... If you […]

https://proe.whimm.ing/these-2-wires/

Bloo (they/she) 🍓 🏳️‍⚧️ 🍉3d ago

No one tells you with #POTS , how fucking weird it is, to wake up drenched in sweat because youre boiling hot... So you chuck the duvet off, only to immediately feel freezing cold _and_ boiling hot all at the same time. _what the fuck_

WearyBonnie 5d ago

Ugh I hate having to get up to meet bodily needs when my body has gone full rest mode. I don't want my heart rate to shoot from 55 to 85+, I don't want to go from (according to Garmin) 8% stress to over 50% stress, close to 100% if I stay on my feet for too long. Stinky #POTS 😑
I will lie here and accrue more relaxation time, at the cost of going to bed later and getting less sleep. Ugh.

Z 6d ago

I'm so embarrassed and so sorry. 😖
#NEISvoid #hEDS #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #spooniechat #fibromyalgia #chiarimalformation #tetheredcord #mutualaid

RE: https://plasmatrap.com/notes/amt3jiihdr