This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog

#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers

I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.

If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.

PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla

#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled

I've had enough. Time to be that bitch!

#POTS #MedicalGaslighting #dysautonomia #hEDS

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully planning and prioritizing the tasks and activities you do throughout your day, people with energy-limiting conditions like mine can avoid falling into a cycle of repeated crashes or worsening symptoms. Pacing isn’t a cure or even a way to improve your overall condition, at least not inherently. But for many people with these conditions — folks with #MECFs (#LongCovid or formerly referred to as “#chronicfatigue”), #POTS, #fibromyalgia, or even #Parkinson’s, for example — pacing can make life a little more predictable."

https://www.theverge.com/features/889835/fitness-trackers-chronic-illness-visible-whoop

It’s Long Covid Awareness Day.

This year marks 3 years of living with it for me… and my health continues to be precarious.

I do my best to walk through life in the present and to manage what I’m able to - while relentlessly advocating for myself in the Canadian* medical system.

If this sounds like you too… know that you’re not alone. I see you.

#LongCovid #MECFS #POTS #LongCovidAwarenessDay

*added for clarity. I also do not currently have any spoons, I’m minus spoons and bed ridden, so I cannot reply to DMs.