Show threadAhimsa3h ago

If you'd rather call your U.S. senators instead of sending them email here's an automated tool for that:

https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27

You can always do both - send email and call - if you have the time and energy!

Thank you for whatever action(s) you're able to do to get this research funding approved! ❤️

@longcovid @mecfs

#FundLongCovid #LongCovid #MEcfs #POTS #Dysautonomia #CovidIsNotOver #MedMastodon #USPol

New/Mode | Make your voice impossible to ignore

Ahimsa6h ago

RE: https://disabled.social/@ahimsa_pdx/116423791927971235

Boosting for the morning folks 😊

@mecfs @longcovid

#USPol #LongCovid #MEcfs #POTS #CovidIsNotOver #FundLongCovid #MedMastodon

Show threadAhimsa17h ago

More info:

- The number of US adults with Long COVID rivals cancer, with a disability burden comparable to Alzheimer's disease and half a million Americans forced to leave the labor force

- Long COVID now surpasses asthma as the most prevalent chronic condition among U.S. children, with 5.8 million kids nationwide affected

- Long COVID risk has not declined over time and reinfection doubles the risk of developing Long COVID

@longcovid @mecfs

#CovidIsNotOver #LongCovid #MEcfs #POTS

Ahimsa17h ago

🚨Urgent!

You can help get more research funding for Long Covid, ME/CFS, and related illnesses!

Use the link below to email your senators and ask them to sign on to a "Dear Colleague" letter for FY27 (fiscal year 2027) which calls for "$210 million in Long COVID research funding at NIH, ARPA-H, and AHRQ"

The deadline for this action has been extended to Monday, April 20!

https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27-1

@longcovid @mecfs

#LongCovid #MEcfs #POTS #Dysautonomia #FundLongCovid #MedMastodon #USPol #NIH

Fylgja17h ago

Quetiapine seems to have lowered my blood pressure. Which, unfortunately, in combination with my #POTS, means I feel like I'm gonna pass out after eating.

The glimmer today is eating and then peacing out ✌️ to the couch - for medical reasons! No, I can't clean anymore, or do anything else for the evening. Leave me in peace 🙂‍↔️😅

(Dad's turn to take on my role now and do the whole bedtime routine)

#Bipolar #spoonie

Matt 📷♿️1d ago
Absolutely wrecked from taking one my cats to the emergency vet last night. The #PEM crash is going to be fucking brutal. I’m gonna head out now. ✌️ #ChronicIllnessesSuck #LongCovid #ME/CFS #ChronicPain #ChronicFatigue #POTS

a cartoon robot with the words...
Kellyfornia2d ago
A dog I used to ait many years ago


#dog #animalphotography #dogs #puppy #chien #chiens #garden #jardin #photography #pots #naturephotography #cute #photographie #photodenature
Lotte3d ago
Op controle bij de oogarts. "Dus u ziet alles vanaf 3 meter afstand onscherp? Tja, we zien niet echt iets in uw ogen wat deze klachten kan verklaren. Uw bril is ook op de juiste sterkte. Komt u over een half jaar maar terug, dan kijken we of het erger is geworden." #pots #LongCovid #pais
Christina Koch4d ago
Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
#MEcfs #POTS #MCAS #CCI
Show threadFrieke4d ago

Dat HandyLegs apparaat werkt als een tierelier bij uittrekken van de steunkousen. Niet bukken, nauwelijks kracht nodig. Ze zojn alleen een tikje wiebelig door het gewicht en lengte van de handgrepen.

#MyLongCovidLife #pots