π·ππππ’First Update From Dianna (Physics Girl)
YouTube
Jules πΊSuperb talk my someone suffering from ME
https://youtu.be/Fb3yp4uJhq0?si=lkuKiST3CFA3PGIj
#LongCovid #MEcfsRecovery #MECFS #tedtalks
https://youtu.be/Fb3yp4uJhq0?si=lkuKiST3CFA3PGIj
#LongCovid #MEcfsRecovery #MECFS #tedtalks
What happens when you have a disease doctors can't diagnose | Jennifer Brea
seitzI'm particularly excited about this release as it marks the end of a long silence. Due to a chronic illness (ME/CFS/long COVID) I wasn't able to sing and play piano for two and a half years, let alone write, record and release music. (continued in comments)
@music #music #newmusic #halloweenmusic #darkpop #timburton #dannyelfman #mecfs #mecfsrecovery
@music #music #newmusic #halloweenmusic #darkpop #timburton #dannyelfman #mecfs #mecfsrecovery
Look, Iβm on a bike! Didnβt think this would ever be a sensation for my adult self. Today it is. I managed a slow ten minute ride.
I do NOT believe in graded exercise therapy (GET) as a treatment for ME/CFS, and when I was really ill it was incredibly counterproductive. However, now that my health has improved through other therapies, I find that moving as much as I can does make me feel more alive. Itβs a delicate balance and one size does not fit all!
@mecfs #mecfs #mecfsrecovery
I do NOT believe in graded exercise therapy (GET) as a treatment for ME/CFS, and when I was really ill it was incredibly counterproductive. However, now that my health has improved through other therapies, I find that moving as much as I can does make me feel more alive. Itβs a delicate balance and one size does not fit all!
@mecfs #mecfs #mecfsrecovery
batteredoldbookOMG! This is sooo exciting. I think I may have managed to remove the mental block that's been stopping me working on my #MEcfsRecovery movie!!!!
Yeah!!!! Super coool!!
it's the end of the world as we know it but i feel fine
#MEcfs #MyalgicEncephalomyelitis
#pwme
#MEcfsRecovery
#ReMakeME
I should do a final-final post about how I got better for #MEcfs and #MEcfsRecovery
"Our bodies need both rest & activity. The daily cycle between these can get smashed up. This is what I think #MEcfs is.
To fix; first I rested, then I paced, then, rather than "pushing through" I gradually moved activity & rest periods together to rebuild a smooth cycle.
At this point (and not before) I could exercise safely and challenge beliefs that were holding me back.
Good luck."
I am sorry to hear that your daughter has #MEcfs. I think it's important to maintain hope. I wasted a whole lot of time being defeatist about my illness.
I'm so glad to know you found some comfort in my words. I have, however, determined that is not safe for me personally to speak here on #mastodon.
Rather than dance around the issue I think it best to devote all the remaining energy that I have for #pwme to my #MEcfsRecovery movie. I hope you find something useful within it.
@KaneG This is a positive step for me.
I will make my #MEcfsRecovery movie alone, and this will be hard, but I'll take with me from Mastodon the knowledge that there are kind people out there & patients who really do want to get well rather than to fight.
This knowledge alone is hugely healing for me. There was a time when I simply could believe how the cruel and hostile the #MEcfs community could be.
Thanks so much for taking the time to write. I'm hope we'll bump into each other again!
Hades.
#Photography #MEcfs #MEcfsRecovery #Precommitment.
It's become clear to today me that Masto has already fallen.
The problem isn't the #birdsite, #Twitter, the problem is people's behaviour around the world today.
I'd like to thank my 627 followers so much for pressing the "Follow" button, I really appreciated it. More than this, I found it healing. Thank you!!
I'm sorry to leave, but I can see that ME patients & dishonest researchers will hound me wherever go & I've had enough of it.
