batteredoldbookA disordered activity curve / energy budget is all it takes to create a day filled with cliff edges to fall off of.
I think this is what Post Exertional Malaise, PEM, actually is.
Fix the curve, fix the PEM.
it's the end of the world as we know it but i feel fine
#MEcfs #MyalgicEncephalomyelitis
#pwme
#MEcfsRecovery
#ReMakeME
New rule:
When I am kind I want people to say thank you. When I am clever I want people to stand around being impressed!
Likewise when I am stupid I want people to go "D'uh!". When I'm cruel I want people to kick my ass.
That's normal. That's how things should be.
For too long I've allowed people into my life who hurt me when I'm helping & who help me when I'm doing the wrong thing.
That's toxicity in a nutshell, simple inverted responses.
And I no longer want them in my life.
Today:
Hospital. My Sarcoidosis is now **undetectable**! Yay!
Costa. Sandwich and apple tart. Yay!
Walk: Melincourt falls. Yay!
Yep. A good day!
"I will protect my happiness"
That's an interesting one to throw up isn't it?
As part of my recovery and to #ReMakeME after illness I'm composing a list of promises to myself.
"I will protect my happiness" just flowed out of my fingers.
It's a funny one. I know I am naturally happy and bright and friendly and positive, but in recent years I see bitterness, depression and despair have taken a hold of me.
This text suggests I think that external influences are stealing my sunshine. 🌞
Huh.
Rebuilding myself after three and a half decades of M.E.
The devastation is remarkable. The pushback is intense. But the rewards are amazing.
Onward.
#ReMakeME