Mastodawn

RE: https://mastodon.nl/@volkskrant/116288642688783416

€🧱⛏️

🆓 https://archive.is/20260325112644/https://www.volkskrant.nl/wetenschap/nederlandse-postcovid-patienten-krijgen-antistof-filtering-als-ik-niets-doe-wordt-het-niet-beter-dan-nu~b5e1d524/

#Covid #PostCovid #LongCovid

Tom Kindlon 3h ago

News Release 24-Mar-2026

"Autoantibodies implicated as drivers of long COVID in new study: Antibodies from Long COVID patients can induce persistent pain-like symptoms in mice"

https://www.eurekalert.org/news-releases/1120982

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

Tom Kindlon 17h ago

"A Victoria University of Wellington team has launched a resource for GPs, following co-design workshops to understand patient experiences of illness and care."

https://www.wgtn.ac.nz/fehps/centres/health-services-research-centre/recent-projects/evidence-based-management-of-long-covid/management-of-long-covid-in-primary-care/Resource-for-GPs-2026.pdf

https://youtu.be/ym8KZJRORdI

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Omega_Scribet 1d ago

Cadeau-artikel Follow the Money:
(Met deze link kun je het artikel binnen 24 uur gratis lezen).

'Post-covidpatiënten waren inderdaad proefkonijn in medicijnexperiment, stelt commissie'

"Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek."

https://www.ftm.nl/artikelen/post-covidpatienten-waren-inderdaad-proefkonijn-in-medicijnexperiment-stelt-commissie?utm_medium=social&utm_campaign=sharebuttonleden&utm_source=mastodon&share=9WVwPO9Q1ls46EhVAufW/exIfDFk3XsUw3eCWCgXeq4GTwt7dTc7Ahr2yb9mQjQ=

#gezondheid #LongCovid #PostCovid #lidocaine #ExcellentCareClinics

@longcovid

Post-covidpatiënten waren inderdaad proefkonijn in medicijnexperiment, stelt commissie

Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek. De uitvoerders van de studie, artsen van pijnkliniek Excellent Care Clinics, wacht mogelijk een hoge boete of zelfs een gevangenisstraf.

Follow the Money - Platform voor onderzoeksjournalistiek

Tom Kindlon 1d ago

New Zealand COVID-19 and long COVID 2024/25: New Zealand Health Survey

Links:
https://www.health.govt.nz/publications/covid-19-and-long-covid-202425-new-zealand-health-survey

https://www.tvnz.co.nz/shows/breakfast/episodes/s2026-e34

https://longcovidsupport.co.nz/news/survey-kiwis-long-covid/

https://www.rnz.co.nz/national/programmes/morningreport/audio/2019027369/more-than-400-000-kiwis-report-experiencing-long-covid

Screenshot from latest Science for ME weekly update

Julia 3d ago

This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens

Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...