As a kid I may also have just been really unfit cos I did do ballet once a week, but not much exercise otherwise once I was older and did less roller-skating and bike-riding. Had no issue doing those, which might mean no issue underlying. I was never a fast runner, age 5 I was slow in races.

My therapist was adamant that the connective tissue is a likely culprit, though, cos I’m autistic, and it’s very common 🤷🏻‍♀️

#mobility #BackPain #ActuallyAutistic #autism #collagen #ConnectiveTissueDisorder

Others with lived experience are the only ones to acknowledge you can be stiff just as much as being loose, cos being stiff means (I guess) I’ve never had a joint dislocate. I also don’t have unusually soft skin. I don’t have any symptoms of less common types of EDS either. Obviously I could be wrong.

But I also have the classic posture type - head tilts up, back over-curves, legs lock.

After 15 years, you wonder.

#mobility #collagen #ConnectiveTissueDisorder #EhlersDanlosSyndrome

No one I know outside of the disability community, even twice my age, had such issues getting a back issue fixed. They’d be done in 3 months, not worse after 3 years.

As a young child I had loose knees but was also tight, ballet teacher said I had flat feet.

As a teenager I ran the slowest out of the entire year of 150 girls in the cross country, and couldn’t keep up on the Duke of Edinburgh hikes.

#mobility #disability #collagen #ConnectiveTissueDisorder