PurpleSpeedwell

143 Followers
191 Following
304 Posts
Housebound, mostly bedridden with Myalgic Encephalomyelitis. Toronto, Canada
Twitter@PurpleSpeedwell
This one is called "Evening at Lucia Falls", sadly I sold this years ago.
#pwD #disabled #blind
Blind woman's $15,000 wheelchair destroyed by Lynx Air. Then they went bankrupt.
https://youtube.com/shorts/LmN7H2e1WMw?si=YoLcWT5tu-Sn2ST0
Before you continue to YouTube

Norway: Professor Silje Reme, one of the members of the Oslo Chronic Fatigue Consortium (who promote CBT, GET, etc), organised an ME seminar in 2022. She claimed in the newspaper Morgenbladet that the police had to be on standby out of fear that ME patients would try to get them.

But this never was a police matter, and the newspaper has now apologised and removed the claim from the article.

https://t.ly/7b7cQ

#MEcfs #PwME #CFS @mecfs
#MyalgicEncephalomyelitis

"I'm at a loss for words. We're dying at the hands of those who should be helping us, yet they face no accountability. I sometimes feel like we don’t matter in this world…" - Kornelia Paulsen
#MyalgicEncephalomyelitis #MEcfs
@halcionandon @longcovid
The rashes could be due to MCAS, which is a common co-morbidity of LC and ME.
Book humor, 1953.

Latest from David Tuller, posted on virology blog:

Update on NICE Response to “Anomalies” Paper; Higher ME/CFS Population Estimates in CDC Survey

https://virology.ws/2024/01/03/trial-by-error-update-on-nice-response-to-anomalies-paper-higher-me-cfs-population-estimates-in-cdc-survey/

@mecfs @longcovid

#LongCovid #MEcfs #MyalgicEncephalomyelitis #CDC

Trial By Error: Update on NICE Response to "Anomalies" Paper; Higher ME/CFS Population Estimates in CDC Survey | Virology Blog

By David Tuller, DrPH In July, the Journal of Neurology, Neurosurgery and Psychiatry published a "whine de coeur" called "Anomalies in the re ...

The happy ending to this doctor appointment is that he said that did not know about this but he would read the document so he could learn more.

This is information that has been known by patients *for years*

Now that there is an official document (from the Mayo Clinic Proceedings) that says this then, thankfully, more doctors will listen to patients.

Sadly, there are still some doctors who won't.

This is a thread of #MutualAid requests that I’m helping to boost. Please scroll down to see the individual requests. Donations help most but boosts can also help and are always welcome and appreciated for any mutual aid requests I’m helping to boost. @mutualaid 👇🏻
1 in 9 Canadian adults have had long-term symptoms from COVID infection, StatCan says

About one in nine Canadian adults have had long-term symptoms from COVID-19 infection, according to a Statistics Canada report issued Friday. That amounts to 3.5 million Canadians, it said.

Pique Newsmagazine