Cynthia Adinig

@[email protected]
123 Followers
21 Following
32 Posts
BIPOC Long Covid & MECFS advocate. I am a marketing specialist and equity policy advisor. I developed Long COVID in March 2020. ​I have had a long career in community service and business, working as a marketing specialist for over a decade. I have worked with members of congress on Long COVID legislation and testified on Capitol Hill about my experience with racism in healthcare. I've been featured on TIME, Bloomberg, Washington Post, and much more.
WebsiteCynthiaadinig.com
Pronounsshe/her
Cynthia AdinigJan 26, 2023
Friday 10am ET I'll speak at the Best Practices for Treating Long COVID Summit alongside Senator @timkaine and HHS. A summit for providers. I'll talk about my recent ER trip & decades-long hurdles in #chronicillness Watch here https://www.facebook.com/SenatorKaine #neisvoid #DisabilityTwitter
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Cynthia AdinigJan 21, 2023
When people of color see me, an expert level patient advocate, be powerless to save my own life in a medical emergency due to #bias & ignorance, this furthers their disinterest in participating in #ClinicalTrials or routine care. No matter how much money we put into outreach.
Cynthia AdinigJan 5, 2023
So I'm in the ER because my long covid symptoms are in a severe flare. Making me react to even water touching my body and every food. I warned staff that I could have an allergic reaction to even prior "safe" items, meds etc. Sure enough I had a severe reaction to saline flush.
Cynthia AdinigNov 30, 2022
Read my piece about #MECFS , its impact on #LongCovid & what this means for the future of healthcare and patient advocacy. Written for the Milken Institute Power of Ideas series. I will also speak about this at this year's #MIHealthSummit. https://lnkd.in/e-AAiFbe #PowerOfIdeas
How the Pandemic Transformed Post-viral Illness in the US

While this pandemic has created a tsunami of illness that has ravaged mankind, it has simultaneously created hope for millions.

Cynthia AdinigNov 29, 2022
Well, I've been spending my last few days dragging white supremacy apologists and educating researchers on the fallacy of psychologizing the symptoms that can't be quantified on lab tests. Time well spent. What are the rest of you up to? #NEISvoid #advocate #longcovid
Cynthia AdinigNov 22, 2022
Hello to all my fellow #LongCovid and #mecfs advocacy orgs and advocates here. Brief intro. I'm a black long covid advocate from the first wave and mom of a genius long Covid kid. Still recovering. POTS, MCAS, EDS, and who knows what else. I'm always fighting the good fight in disability and equity often with just my keyboard. I'm knee-deep in policy, legislation, research and writing. Feel free to follow me. #longcovid19 #longcovidKid #longhauler