Mastodawn

It’s okay to slow down. It’s okay to set boundaries. And it’s okay to find new ways to stay connected — whether that’s a video call, a quick text, or simply giving yourself permission to rest. Grief and connection can coexist, and both deserve space.

Read more about navigating Long COVID during the holiday season — with compassion, pacing, and care — here: https://whn.global/navigating-long-covid-during-the-holiday-season

#LongCOVID #COVID19 #COVID #LongHauler #PublicHealth

Navigating Long COVID During the Holiday Season - WHN

This post is part of a new blog series focusing on long COVID. See parts 1, 2, 3, 4, and 5. Long COVID and associated chronic fatigue are often difficult to manage. This is especially true during the holiday season, when energy demands – physical, mental, and emotional – are at a maximum. So, as the winter holidays … Continued

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lipputankodon May 18, 2024

2/n
Ohessa toteutuneen #UniteToFight2024 web-konferenssin ohjelma, jossa paljolti mentiin mitokondria ja solutasolle. Ohjelma sisälsi paljon myös #longhauler’ien kannalta mielenkiintoista aineistoa. Lisäksi oli runsaasti potilaskertomuksia ja taukoihin oli ympätty myös tietoiskuja. #Brainfog heikensi varmasti monella sairastuneella asioiden omaksumista. Oma potti 17 CME opintopistettä 😜

#LongCovid #MECFS #Covid19 #Koronavirus
https://unitetofight2024.world/program/

UniteToFight 2024 – Program

Our program comprises a special mix of expert insights, personal stories, and cutting-edge research blending in with modern patient engagement approaches and grassroots movements, making it a unique and valuable resource for bringing together those passionate driving change.

UniteToFight2024

Longhauler Advocacy Project Apr 16, 2024

#C19LAP member, division lead & 4 year #Longhauler @TammyWilshire1 speaks with @pfizer for their “Dear Scientist” series.

Pfizer developing ways to study the disease & partner w/ orgs, med centers, & clinics to investigate potential treatments.
https://sponsored.bostonglobe.com/pfizer/long-covid-dear-scientist/

Dear Scientist: I am surviving long COVID, but my old life is gone. How can we help others who are going through this? | Sponsored

In March of 2020, Tammy Wilshire was sick with what she thought was a mild case of COVID-19. But over the following months, new symptoms kept mysteriously appearing. Tammy’s heart rate and blood pressure skyrocketed inexplicably. Her hair started to fall out. She developed tremors. She became unable to do her usual daily tasks, like […]

Sponsored

Sean Boyer 🇵🇸 FREE PALESTINE Feb 5, 2024

@ThunderHoneySnow
We've long suspected something like this action. It certainly helps account for why I feel this way all the time. Since my infection in June of 2022, I have not been the "same person".

Take it from a #longHauler... Do NOT get #covid, ever.

#staySafe #wearAMask #covidIsNotOver #covidIsWorse

Sean Boyer 🇵🇸 FREE PALESTINE Jan 7, 2024

Fresh #introduction for 2024: The Year It All Comes Crashing Down!

I'm Sean - a formerly prolific rock #musician, current #foss engineer, full-time #audioEngineer at a busy roadhouse #theatre and #covid19 #longHauler, almost 2yrs with #pem, #pots, and an host of other goodies. #wearAMask #saveALife

I like working on projects that enable marginalised persons to take back their autonomy on and offline. I subscribe to #diy and am a voracious #autodidact. I make #bots for #mastodon and the #fedi. I'm building a replacement for #bandcamp and #spotify.

I care about all #humans and #animals on this planet, an am strongly aligned against their destruction via a #socialist #anarchist education. I'm against all #fascists, and call #bullshit where I see it, and I see every #microexpression. I'm pretty #autistic.

I #protest for #humanRights, #disabilityRights, #lgbtqRights, against #climateDestruction, #corporateGreed and for a #ceasefireNow in #palestine.

I educate myself on the world around me - with help from y'all - and I do my best to educate and #lift those around me.

I'm friendly, weird, and irreverent. Feel free to follow, boost and interact. This is a social media!

Longhauler Advocacy Project Nov 11, 2023

If you could give the world a message about #longcovid in 1-2 sentences, what would you say?

#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability

Longhauler Advocacy Project Nov 10, 2023

What have you developed as a result of #LongCOVID?

#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!

#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability

Longhauler Advocacy Project Nov 8, 2023

The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?

#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability

Longhauler Advocacy Project Nov 7, 2023

What type of medical provider have you found most helpful in managing your #longCovid (if found).

#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability

Longhauler Advocacy Project Nov 5, 2023

#LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.

#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability