Cynthia Adinig
Hello to all my fellow #LongCovid and #mecfs advocacy orgs and advocates here. Brief intro. I'm a black long covid advocate from the first wave and mom of a genius long Covid kid. Still recovering. POTS, MCAS, EDS, and who knows what else. I'm always fighting the good fight in disability and equity often with just my keyboard. I'm knee-deep in policy, legislation, research and writing. Feel free to follow me. #longcovid19 #longcovidKid #longhauler
Nov 22, 2022 at 5:00amWeb
Show threadThe BirdNov 22, 2022

@CynthiaAdinig Hi! Welcome!

I also got #LongCovid. Been difficult.

Show threadCynthia AdinigNov 22, 2022
@Aaidanbird Fortunately and unfortunately it seems as if we have a lot more than long covid in common. Nice to virtually meet you.
Show threadThe BirdNov 23, 2022

@CynthiaAdinig Glad to meet you too!

Any projects you're currently working on?

I've been working on a petition to get all medical clinics and hospitals in my city to reinstate mask mandates. It's baffling and harmful to make it optional as if airborne diseases aren't real... I view masks similar to handwashing. Both reduce viral and bacteria load in air and on hands significantly, and are needed for safer and cleaner spaces for patients and medical employees. Hoping to launch it December 1st.

Show threadCynthia AdinigNov 25, 2022
@Aaidanbird I'm in the process of launching a company that will systematically meet with hospital networks with the purpose of streamlining care for illnesses commonly developed from long covid illnesses. Such as dysautonomia, MCAS, and MCS. Alongside tackling equity with medical staff and researchers. I'm also working on a variety of diagnostic tests.
Show threadMorgan DawnNov 22, 2022

@CynthiaAdinig

Hello, I also have EDS. Weak wave from my corner of the internet

Show threadCynthia AdinigNov 22, 2022
@morgandawn my wrists feel this comment so much. Lids that screw on are my daily arch nemesis😅
Show threadMorgan DawnNov 22, 2022

@CynthiaAdinig My first wrist #subluxation was trying to open a Dijon mustard jar. Since then, mustard jars have been on my #nemesis list. The list expands every year. These foes are wily and can circumvent many assistive devices and power tools. Be on the lookout!!

#EDS #hypermobility

Show threadCynthia AdinigNov 29, 2022
@morgandawn my son's daily arch nemesis is a Gatorade lid. It feels good to be able to actually open it for him and show him the things I learned, after spending my childhood using pliers and scissors on various lids while being judged by my family who all have EDS but somehow didnt struggle with lids.
Show threadGTinNCNov 22, 2022
@CynthiaAdinig Hi. Welcome