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Thoughtful blog post by somebody with long Covid and ME/CFS. Initially focuses on describing the post-exertional malaise effects of working 3 days in a row before discussing how the whole illness(es) and the effect it is having on his life is making him feel emotionally
https://centerleftstack.substack.com/p/the-debt-came-due
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
#PostExertionalMalaise #PEM
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“Three months off, at minimum. Move to the first floor. Minimize every exertion. She mentioned a potty chair. Let that land for a moment. A potty chair, so I don’t have to walk the ten feet to the bathroom.
I have a bathroom that close and my doctor was genuinely concerned about the exertion cost of reaching it. That is where I am.”
4/
“I’ve moved to the 1st floor*. The upstairs where I used to sleep, where I used to have a life that spread itself across multiple rooms, is now effectively another country. I don’t go there. The energy cost of stairs is a luxury I cannot afford. My world has compressed to the dimensions of a single level of a house, & within that level, primarily to the bed”
*=“ground floor” in UK/Ireland/probably some other countries
#mecfs #longcovid
@mecfs @longcovid
Tom Kindlon