CRPS & Nebenerkrankungen 2026 – Deine Erfahrung zählt! 🧡

Nach unseren Umfragen 2017 und der weltweiten Studie 2019 starten wir jetzt eine neue Erhebung.
Wir wollen wissen: Welche Begleiterkrankungen treten heute auf – und wie erlebst du sie im Alltag?

Deine Teilnahme hilft, Zusammenhänge besser zu verstehen und Versorgungslücken sichtbar zu machen.

👉 Jetzt mitmachen:
https://forms.microsoft.com/e/iqebzMXFiJ

Gemeinsam Wissen schaffen. Für mehr Verständnis. Für bessere Versorgung.

#CRPS #Selbsthilfe #Umfrage

I was told everything was removed. It wasn’t.
What was left behind cost me months of answers.
This is what medical gaslighting looks like. 🖤
linktr.ee/skylanarissa
#ChronicIllness #Disability #EDS #EhlersDanlosSyndrom #CRPS #DRGStimulator #MedicalNegligence #MedicalGaslighting

https://dreamingofdragonscom.wordpress.com/2026/04/04/saturday-health-update-the-drg-saga-medical-gaslighting-and-the-cost-of-being-left-behind/

They left something behind in my spine.
This is what happens next.
Chronic illness, medical trauma, and refusing to be ignored. 🖤
link.tree/skylanarissa
#CRPS #Disability #DRG #Abott #ChronicIllness #SCS #SpinalCordStimulator #DisabilityAdvocate

https://dreamingofdragonscom.wordpress.com/2026/03/21/saturday-health-update-of-scans-spines-and-unfinished-business/

I finally got round to sending my statement and evidence about the accident at work I had in November (fell down an open drain left by a contractor).

Writing it, I realised why I'd put off for so long: the anxiety I've felt about my CRPS returning because of the injury to my foot and leg. I made it abundantly clear that this was the main mental anguish I've been suffering since November. Not to mention the physical pain every time I walk.

Feels good to have gotten it done.
#CRPS #RSD

Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.

https://pubmed.ncbi.nlm.nih.gov/30747906/

https://doi.org/10.1097/j.pain.0000000000001520