SkyThey left something behind in my spine.
This is what happens next.
Chronic illness, medical trauma, and refusing to be ignored. 🖤
link.tree/skylanarissa
#CRPS #Disability #DRG #Abott #ChronicIllness #SCS #SpinalCordStimulator #DisabilityAdvocate
dodothedev🦤💻I finally got round to sending my statement and evidence about the accident at work I had in November (fell down an open drain left by a contractor).
Writing it, I realised why I'd put off for so long: the anxiety I've felt about my CRPS returning because of the injury to my foot and leg. I made it abundantly clear that this was the main mental anguish I've been suffering since November. Not to mention the physical pain every time I walk.
Tom Kindlon3/
From first link:
“Law No. 15.176, of July 23, 2025, establishes the basis for the creation of a national program to protect the rights of people affected by fibromyalgia, chronic fatigue syndrome, complex regional pain syndrome, and other related diseases.”
Johannes W. DietrichComplex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.
@FourQ ♿On the hunt for a front wheel with suspension to add to the knock-off Frogs Legs forks on my wheelchair.
If anyone knows of any ~7" castor wheels with shock absorption / suspension on the wheel itself could you get in touch please?
#Disability #Wheelchair #Pain #ChronicIllness #CRPS
If anyone knows of any ~7" castor wheels with shock absorption / suspension on the wheel itself could you get in touch please?
#Disability #Wheelchair #Pain #ChronicIllness #CRPS
scottymarinara
Dr Priya Sammani ( MBBS ,DFM )One warm afternoon, Milee, a 46-year-old woman, walked into my clinic. Clutching a small, weathered diary in her hand, she moved with slow, deliberate steps. #chronicaches #chroniclowerbackpain #chronicmyofascialpain #chronicpain #chronicpainmanagement #complexpainregionalsyndrome #crps #crpsdisease #crpspainsyndrome #crpstherapy #crpstreatment #severehippain #severeneckpain
thomaswedelFrage als Nicht-Mediziner an die MedBubble: Gibt es zur Behandlung von #CRPS eine Einheits-Vorgehensweise oder eigenständige europäische/deutsche „Schulen“? An meinem besten, extrem leidenden US-Freund wird seit Jahren von US-Ärzten herumgedoktert. „Zweite Meinung“ wäre hilfreich. Bin dankbar für alle Links zu europäischen Communities/Einrichtungen, sofern es solche gibt.
Eugenia LI'm at my mom's, and it saddens me to see her in much pain from #CIRVA / #CRPS, a chronic condition where the whole arm is getting extremely painful, for years after vaccination. For her it started immediately after getting the flu vaccine and later the covid one on the same arm (her other arm had no problem). I feel guilty that I was pushing her to get the covid vaccine back then. Her condition is very rare, but it does happen occasionally.
Maggie MaybeI watched that Netflix program about that little girl Maya with #CRPS this morning. She got it from a random respiratory infection.
Did you guys know that the child protection services department in Florida is privatized??
And that wasn’t the only problem, this family had to sue Johns Hopkins for accusing the mother of Munchhausen by proxy.
But you guys, Florida took this girl from her family because she had chronic pain and the doctors accused the child of lying. Even Johns Hopkins was claiming that she wouldn’t be having problems after a respiratory infection.
If you live in Florida and your child has long Covid BE CAREFUL.
Bless this family for putting themselves through even more trauma and suing the people who did this. Hopefully Johns Hopkins and Florida has learned its lesson and they don’t do this to anyone else.