2) very slow, but I sped them up cause otherwise you'll fall asleep asleep watching it.

For those who are sensitive to fast moving images. Some parts might be too much for you to process. Especially from 05.30 to 05.50. Please be careful!!

Love Anilio. 😘

#pwme #art2cureME #millionsmissing #severeME #photophobia

I'm a strong believer of the ripple effect.

That no matter how ill you are and how small your actions therefore may seem.

Your voice matters and together we are making a difference.

So please keep being your kind of loud.

A short video with some hands, music and despite this freaking illness still loads of love for life.

https://m.youtube.com/watch?v=PUFQZ8VSVC4&feature=share

#pwME #art2cureME #SevereME #millionsmissing

Ripple

YouTube
Great to have 500 freaking characters. I don't know how many times trying to fit 280 in one tweet has caused me too much effort and potentially a crash. I'm liking Mastadon so far. Let's make good use of them. Blah blah blah blah Blah blah blah blah Blah blah blah blah Blah blah blah blah Blah blah blah blah Blah blah blah blah #pwme #myalgicE #millionsmissing #severeME #photophobia #hyperacusis #POTS #spoonie #art2cureME blah Blah blah blah blah blah blah blah blah blah blah blah blah blah blah