Show threadAhimsa2d ago

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

#MILLIONSMISSING USA | #MEAction

#MEAction is dedicated to taking action in places that affect people with ME, Long COVID, and other chronic illnesses. Join us!

#MEAction
Ahimsa2d ago

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

2026 #MillionsMissing Take Action Toolkit

#MillionsMissing 2026 Toolkit Governments and healthcare systems around the world fail to classify myalgic encephalomyelitis (ME) as a serious, complex medical condition, leading to significant neglect in medical care and social services. Over and over again, people with ME and Long COVID are ...

Google Docs
Bicicletta2d ago

Samstag 9. Mai 2026
Europaplatz, ZĂźrich

#mecfs, #millionsmissing

Show threadAhimsa5d ago

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

Join us this #MillionsMissing Thanks to @Corywysz 4 video! Toolkit at LINK IN BIO. #FrailAndFurious

YouTube
Ahimsa5d ago

RE: https://disabled.social/@ahimsa_pdx/116495749131742719

Update from #MEAction:

"How to Participate in #MillionsMissing 2026"

https://www.meaction.net/post/your-story-can-change-everything

Some actions listed:

- Share your story on social media from May 9 to 16

- Submit your story to #MEAction's Story Bank

- Help protect Medicaid by signing the letter sent to HHS Director

- Register to join the event in Washington D.C. on May 12

@mecfs

#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFurious

Show threadÖ. Ges. für ME/CFS5d ago
Macht ME/CFS-Betroffene sichtbar, vllt. mit blauer Rose/Schleife am ESC-Outfit, oder kommt am 09.05. zu unserer Protestaktion! Unsere Protestaktion: 📍09.05.2026 14:00-16:00 📍Platz der Menschenrechte, Wien 👉Alle Infos unter mecfs.at/unversorgts... #unversorgtseit1969 #MECFS #MillionsMissing 3/3

#unversorgtseit1969 - ÖG ME/CF...
#unversorgtseit1969 - ÖG ME/CFS

Am 12. Mai ist der Internationale ME/CFS Tag. Dieser Tag soll auf die schwere Krankheit und die Situation der Betroffenen aufmerksam machen und Bewusstsein schaffen. Denn obwohl ME/CFS seit 1969 von der WHO als neurologische Erkrankung unter G93.3 klassifiziert ist, ist die Situation der Betroffenen äußerst schwierig: Es fehlt an Aufklärung, medizinischer Versorgung, sozialer Absicherung und […]

ÖG ME/CFS
dgspsoaMay 1

Netzfund zur Info:
Bei den #MEcfs #Liegenddemo wird es auch Banner zu erwerben geben.

ME/(cfs) Banner - Hänge es auf!

Unter Fenster, Balkon, Gartenzaun. An Rollstuhl, Fahrrad, ins Auto legen.

Fßr längere Haltbarkeit gespannt aufhängen (keine Falten).

(Poste ein Foto auf Insta: #MEBanner #MEcfs #MEAwareness #Liegenddemo #MillionsMissing )

Show threadAhimsaApr 30

@mecfs

Source for the post above = https://bsky.app/profile/meactnet.bsky.social/post/3mkq7qtwvr62w

Links with more information about ME/CFS:

https://www.meaction.net/what-is-me

https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527

https://www.cdc.gov/me-cfs/about/index.html

#MEcfs #PwME #MillionsMissing

#MEAction Network (@meactnet.bsky.social)

Telling your story for #MillionsMissing this year is so important! There are MANY ways to tell your story & it all helps! Be yourself & know that if sharing your story brings up big feelings, you are not alone! We are here to help: https://ow.ly/lMWt50YSCqy #FrailAndFurious

Bluesky Social
AhimsaApr 30

May 12 is coming soon! #MEAction has this request:

"Telling your story for Millions Missing this year is so important!

There are MANY ways to tell your story & it all helps! Be yourself & know that if sharing your story brings up big feelings, you are not alone!"

Tips for how to tell your story:

https://www.meaction.net/millionsmissing-storytelling

This has a link to the Millions Missing toolkit and two videos.

@mecfs

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious #ChronicIllness #Medicaid

AhimsaApr 29

"Blue Sunday" Tea Party
#MEAction North Carolina

Sunday, May 17
1 pm – 2:30 pm EDT

Blue Sunday is "a worldwide celebration of the ME community and the ways we support each other through this terrible disease. It is a way for people with ME to feel a sense of connection and community despite the isolation of this disease."

You're invited! 😊

Details:

https://www.meaction.net/event-details/blue-sunday-tea-party

Registration:

https://us06web.zoom.us/meeting/register/1Gx24nNBRHSuCB4ArBBsNA#/registration

@mecfs

#MEcfs #PwME #BlueSunday #MillionsMissing #Advocacy #Support

Blue Sunday Tea Party | #MEAction

#MEAction NC is having a tea party and you’re invited! Click for details.

#MEAction