#introduction post!
Hi, I'm Stella! I go by she/her pronouns and love #tech #pokemon #celeste and #linux
I'm #trans #aromantic #asexual and I have #depression #anxiety and #arfid
Also, I use arch btw lol
#introduction post!
Hi, I'm Stella! I go by she/her pronouns and love #tech #pokemon #celeste and #linux
I'm #trans #aromantic #asexual and I have #depression #anxiety and #arfid
Also, I use arch btw lol
Having to remind myself that the purpose of buying groceries is to *eat* groceries.
My experience of #ARFID and how I manage certain aspects of it.
https://elaurianwellbeing.wordpress.com/2025/03/04/arfid-sucks-2/
I've said it before, and undoubtedly will again, #ARFID SUCKS.
It's one of the hardest parts of autism for me, often very disabling. Days when I just CAN'T eat. Food turns to wormy clay in my mouth, even safe foods seem scary.
It's really messed up.
News Haber EshaHaber 20 yıldır sadece patates yiyor: Patatesi kızartma, haşlama, püre olmak üzere pek çok şekilde tercih ettiğini belirten Shaw, hastalığı nedeniyle oldukça iştahsız olduğunu, patatesi de sadece hayatta kalmak için yediğini söyledi.
ARFID (Avoidant/Restrictive Food Intake Disorder), kişinin belirli yiyeceklerden veya yiyecek türlerinden kaçınması, yediği toplam… https://www.eshahaber.com.tr/haber/20-yildir-sadece-patates-yiyor-204283.html?utm_source=dlvr.it&utm_medium=mastodon EshaHaber.com.tr #Patates #ARFID #BeslenmeBozukluğu #YemekFobisi #SağlıklıBeslenme
Protein shake experiment #2
Added Greek yoghurt, banana, and raspberry jam...not too shabby!
More yoghurt and fruit next time, still a touch of a grainy texture (think there always will be a bit), but a VAST improvement on my first one, this may be an option for me, yay!
I just heard a really good interview with Sarah Cox of the butterfly foundation about #ARFID on ABC News Radio as part of the hourly news. There's an article covering it that you may find useful.
Avoidant/Restrictive Food Intake Disorder.
https://www.abc.net.au/news/2025-01-06/eating-disorder-arfid-picky-eating/104648840
#Autism #autistic #neurodiverse @actuallyautistic #AutisticBurnout #ActuallyAutistic
What if this approach is seriously arse about. And we can do better.
#Hypersensitivity to and #avoidance of certain flavours & textures is part of our #sensory profile for many #ActuallyAutistic folks. As with all of our sensory issues, the ways we devise to deal with them come at a cost, socially, emotionally & physically. Being pressured to let go of strategies that have protected us can feel life threatening. Especially if we don’t understand where they’ve come from & how they’ve helped us (hard to do when our various unusual behaviours are examined in isolation from each other & each set pathologised with an unhelpful diagnosis).
In my experience, we can change the habits & routines that protect us only when (i) we feel safe & (ii) it is our choice to do so. In our own ways, at our own speed, on our own terms. This profound need for autonomy gets pathologised as ‘demand avoidance’ but it’s another manifestation of the strategies for survival that we develop & cling to for dear life. Take this from me & I will die.
How about, for kids & adults ‘with #ARFID’, we approached interventions by starting with respect for autonomy. This means learning about how this person experiences sensory pleasures & discomforts around eating & taking them seriously. Then developing options for change that can be chosen by that person, or not. At their own pace.
It worked for me. As in so many areas of my life, this is the only approach that does.
Like so many folx who grew up undiagnosed I learned to be ashamed of my struggles (in denial about them, intolerant of their manifestation in others) & embarrassed about my gifts. Wish I’d understood my #neurodivergence, & that of my family members, when I was parenting kids.
So glad we can do better now. I wish the support systems whose funding rests on adopting pathologising diagnostic categories would catch up!!
@actuallyautistic #AutisticElder #AutisticParent #disability