New issue of #TheSickTimes includes a study that found no evidence that wearable alerts improve pacing.

https://thesicktimes.org/2026/02/17/research-updates-february-17/

Not super surprised by this.

The alerts themselves can trigger emotional and sensory exertion.

The data they're generally tracking includes just one type of stressor (physical) - I have yet to find a wearable that can (for example) track emotional overload via voice characteristics; track cognitive load via things like "time spent on computer"; track sensory stimulation via light and sound levels and rate of change.

The proportion of time spent resting and type of rest is a critical factor that is also generally not tracked: vertical vs horizontal vs reclined; physical vs cognitive vs sensory and emotional; degree of stressors and type of stimuli present.

As long as a trial fails to track rest as well as the different types of exertion, impact will be buried in the noise.

@longcovid @mecfs
#LongCovid #MECFS #StopRestPace #PASC

Research updates, February 17 - The Sick Times

A new review in Dovepress states that Long COVID, myalgic encephalomyelitis (ME), and postural orthostatic tachycardia syndrome (POTS) should be classified as neuroimmune disorders.

The Sick Times - Chronicling the Long Covid crisis
Long COVID taught me to slow down and stop trying to meet able-bodied benchmarks - The Sick Times

My life before Long COVID was very busy. I was in college, partying a lot and working as an artist and activist. I didn’t make time to rest, and it caused me to burn out. I tried to do everything at once and became overwhelmed.

The Sick Times - Chronicling the Long Covid crisis

Video from Solve ME, about 13 minutes long.

"Hollis Mickey on Pacing with Severe M.E."

https://www.youtube.com/watch?v=5LUox41bP94

"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"

"My body is having an unreasonable reaction to a reasonable action."

Transcript:

https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf

#MEcfs #SevereME #PwME #StopRestPace #SolveME

Hollis Mickey on Pacing with Severe M.E.

YouTube

More quotes:

"We also hosted our annual EmPOWER M.E. virtual forum, designed to give patients practical tools and legal knowledge to navigate life with complex chronic illness.

This year’s main session focused on the life-saving practice of pacing — including physical, emotional, cognitive, practical, and sensory strategies …"

Recording of the June 27 EmPOWER M.E. forum:

https://www.youtube.com/watch?v=to9xPPuRM1o

@mecfs @longcovid

4/n

#MEcfs #LongCovid #POTS #ChronicIllness #PEM #StopRestPace

“Pacing: Power In Slowing Down (EmPOWER M.E. 2025)

YouTube

New video from Solve ME, a recording of the EmPower M.E. event on June 27:

Pacing: Power In Slowing Down
(about one hour long)

https://www.youtube.com/watch?v=to9xPPuRM1o

"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."

@mecfs @longcovid

#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME

“Pacing: Power In Slowing Down (EmPOWER M.E. 2025)

YouTube

From the #ThereForME series:

"The importance of understanding rest"

https://www.thereforme.uk/p/the-importance-of-understanding-rest

"This cultural dismissal of rest is especially harmful to people with ME or Long Covid, who must often rest for prolonged or indefinite periods. They face not only the impact of their condition, but also repeatedly justifying their need to adapt."

@mecfs

#MEcfs #PwME #LongCovid #ChronicIllness #StopRestPace

Some ME/CFS resources (groups, documents, videos) in no particular order:

I mentioned the #MEAction group earlier in this thread (see #StopRestPace post)

Their website has lots of good info!

https://www.meaction.net/

Their events calendar includes support groups, advocacy meetings, and support for artists and writers:

https://www.meactions.org/event-list

Recent youtube posts:

https://www.youtube.com/@MEActNet/shorts

8/n

@mecfs @longcovid

#MEcfs #PwME #LongCovid #MillionsMissing #WorldMEDay #MEAwarenessDay

Home

We’re Igniting a Global Revolution in ME Care Our movement fights for recognition, research and clinical education so that, one day, all people with myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME, or ME/CFS), and Long COVID will have access to compassionate and effective care. We are advocating for our communities at every government table and protesting on … Home Read More »

#MEAction Network

Okay, taking a break for a while!

I'm resting to avoid PEM (post-exertional malaise) also called PESE (post-exertional symptom exacerbation)

Speaking of resting here's a link to the #StopRestPace page by #MEAction which was created a few years back to explain the importance of pacing and resting to new Long Covid patients:

https://www.meaction.net/stoprestpace/

It has links to a few different pacing and management guides.

6/n

@mecfs @longcovid

#MEcfs #LongCovid #MillionsMissing
#MEAwareness #WorldMEDay

Stop. Rest. Pace.

If you are new to Long COVID or ME/CFS, it is important to learn how to #StopRestPace.

#MEAction Network

Reminder - Long Covid patients and ME/CFS patients have a lot of overlap in symptoms. Some Long Covid patients fully meet the ME/CFS diagnostic criteria.

Research on Long Covid/Post-Covid and ME/CFS should be coordinated - new information could help both patient populations!

Some links for folks who are brand new to this topic -

What is ME:

https://www.meaction.net/learn/what-is-me/

#StopRestPace for Long Covid:

https://www.meaction.net/stoprestpace/

#COVID #CovidIsNotOver #LongCovid #MEcfs

What is ME?

What is ME? Myalgic encephalomyelitis (ME) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a complex chronic disease that presents with symptoms in multiple body systems.  ME is a neurological disease according to the World Health Organization.  Susceptibility may be genetic, but the disease is triggered by infection in the majority of patients.  ME may be … What is ME? Read More »

#MEAction Network

More quotes:

"Check out other organizations that fight for Long COVID day in and day out including:

Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others!

Share information, check out these groups, donate today!

Long COVID research care and treatments matter for everyone."

@longcovid

3/3

#LongCovid #MEcfs #Awareness #ChronicIllness #StopRestPace #LongCovidAwarenessDay