Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.
https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584
Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
Free webinar on June 10:
"… host Dr. Jessica Maya will talk to the DecodeME management team and recent Catalyst Award honorees Prof. Chris Ponting, Sonya Chowdhury, and Andy Devereux-Cooke about how their study could reveal many more genes, gene-regulation elements, and biological pathways that affect ME/CFS risk, advance efforts to identify new biomarkers for disease subtypes, and ultimately lead to new treatments."
Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
Another way to help is to donate to the "Sequence ME & Long Covid" research project:
Action for M.E. just announced yesterday that this project got more funding! Read more about the project here:
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
19/n
#MEcfs #LongCovid #MedMastodon #SequenceME #Research #ActionForME
RE: https://mas.to/@eleanorrees/116263420791396664
Donations requested for the #SequenceME genetic research project which builds on the #DecodeME research. Read more about the project here:
https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/
The JustGiving donation link is in the quoted post.
Thanks to @eleanorrees for setting up this donation page ❤️
And happy birthday! 🎉
Some info on #SequenceME, an exciting research project that wishes to use in a different way the samples collected for DecodeME
People can financially support such research here:
https://www.actionforme.org.uk/research-campaigns/our-research-work/decodeme-donate
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME ( https://www.clinicalresearchnewsonline.com/cln/pressreleases/2024/12/18/oxford-nanopore-action-for-me-and-university-of-edinburgh-launch-groundbreaking-study-into-the-genetics-of-me ) , here's a donation link https://www.decodeme.org.uk/support-us/
Alternatively donate directly to Prof Ponting's #MECFS lab research
https://donate.ed.ac.uk/support/ME-CFSResearch
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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