Tom KindlonFrom Canada:
Identifying electroencephalography (EEG)-based biomarkers of Long COVID
https://mcgill.scholaris.ca/items/031cf911-4bca-473c-9f37-8b94853c6d55
Screenshot from Science for ME weekly update
What does it mean to recover from long covid? — Dennis and Alwan @nisreenalwan
https://www.bmj.com/content/393/bmj-2026-100054
"A striking feature of the literature on long covid trajectories is how loosely recovery is defined."
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain
@[email protected] #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @[email protected]
What does it mean to recover from long covid?
Defining recovery is essential for research, clinical care, and patient experience, say Charlie Dennis and Nisreen A Alwan If you have long covid, how can you tell if you have fully recovered? Six years of evidence and collective lived experience show us that this is not an easy question to answer. Yet if we do not define recovery, we cannot properly count the number of people living with long covid, and its present and future impact on the population’s wellbeing, economic productivity, and health systems. Long covid remains a substantial global health problem. A recent report estimated that this condition will cost countries in the Organisation for Economic Cooperation and Development (OECD) $11bn (£8.3bn; €9.6bn) a year in healthcare costs over the next decade. The projected economic costs are $135bn a year.1 Since the start of the pandemic, clinicians, researchers, and health organisations have devoted substantial effort to defining and measuring long covid. In 2020, one of us (NAA) proposed that long covid be defined largely by what it is not: recovery from acute covid-19.2 This approach was reflected later in the World Health Organization’s definition, which describes long covid …
Long COVID risk by pre-infection symptoms and functional status: A retrospective cohort study of data from the All of Us Research Program
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0330793
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
International Declaration in Support of Research and Drug Development for ME/CFS and Long Covid
https://declaration.mecfs-research.org/en/declaration
Image is from June 2026 IACFS/ME Newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
Council of Medical Specialty Societies (CMSS) Long COVID Resource Repository
https://cmss.org/programs-and-resources/long-covid-resource-repository/
I haven't vetted this page properly but some resources are good
Image is from June 2026 IACFS/ME Newsletter
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
#MedMastodon
NIH press release:
"Immune system may attack nervous system in some Long COVID patients"
https://www.nih.gov/news-events/nih-research-matters/immune-system-may-attack-nervous-system-some-long-covid-patients
Paper:
A causal link between autoantibodies and neurological symptoms in long COVID
https://pubmed.ncbi.nlm.nih.gov/42208499/
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"
https://journals.sagepub.com/doi/10.1177/21501319261458748
Screenshot from Science for ME update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM
Single-cell profiling of innate and adaptive immune dysregulation in Long COVID
https://www.biorxiv.org/content/10.64898/2026.06.04.730206v1
Screenshot from latest Science for ME @s4me weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
From Chile
De novo COVID-19-associated insulin resistance drives dysregulated neutrophil extracellular trap formation (NETosis) four months after infection
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1787799/full
Screenshot from science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
1/
C1-esterase Inhibitor [RUCONEST] Treatment is Associated with Immune and Vascular Pathway Modulation in PASC with Neurological Symptoms: Longitudinal Plasma Proteomics
https://link.springer.com/article/10.1007/s10571-026-01736-4
Screenshot from science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
