Mastodawn

This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens

Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...

Aki ₍^. .^₎⟆1d ago

#PostCovid oder wie ich es nenne: das Leben bei temu bestellt

Julia 1d ago

RE: https://mastodon.social/@NichtGenesen/116262026691622019

#mecfs
#postvac
#postcovid
#longcovid
#Landtagswahl
#LandtagswahlRLP
#rheinlandpfalz
#volt
#gruene
#spd
#fdp
#cdu

Tom Kindlon 1d ago

Developing a platform protocol for clinical trials evaluating interventions that target proposed mechanisms of Long COVID: RECOVER-VITAL

https://journals.sagepub.com/doi/abs/10.1177/17407745261422437

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

Show thread

ahimsa 1d ago

For me the light backgrounds are easier to read, but I know that some people with ME/CFS and Long Covid can't read text on a white background.

So here are the same images (from the previous post) with dark backgrounds. (Alt text should be same as previous post)

@mecfs @longcovid

#DarkMode #MEcfs #PwME #LongCovid #PwLC #PostCovid #MedEd #ChronicIllness

ahimsa 1d ago

Edit: Volunteers must register to get a link to Monday's kickoff session!

🗣️ ME/CFS Advocacy Week starts on Monday, March 23

First Zoom call starts at noon Pacific, 3 pm Eastern (will be recorded)

More details in the participant toolkit, see links below.

Canva version:

https://www.canva.com/design/DAHDA3p0_NY/oTfLyW-lmGZIlbDdQfqmoA/view

PDF version:

https://solvecfs.org/wp-content/uploads/2026/03/Printable-Version-Advocacy-Week-2026-Participant-Toolkit-2.pdf

@mecfs
@longcovid

#USPol #MEcfs #PwME #LongCovid #PwLC #PostCovid #MedEd #ChronicIllness

acid 1d ago

Okay, that didn't turned out as I wanted but it was an interesting project and my first self-portrait. I didn't committed fully on the execution of the last step, so it didn't came out exactly as I envisioned, but that's okay, it enjoyed the process. #ChronicIllness #longcovid #postcovid

Show thread

Ustinoff auf Eis 1d ago

Über die Gründe an der Stelle könnte ich nur spekulieren. An anderen Stellen geht es ganz klar darum, Geld einzusparen. Das sind keine unglücklich fehlerhaften Einzelfallentscheidungen. Wie wir u.a. von Bluesky her wissen, wird bei #PostCovid systematisch Hilfe verweigert.

Tom Kindlon 2d ago

From the US:

A phase 2a double-blind, placebo-controlled randomized trial of the SARS-CoV-2-specific monoclonal antibody AER002 in people with Long COVID

https://www.medrxiv.org/content/10.64898/2026.03.07.26347857v1

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Doris 2d ago

https://www.zdf.de/video/shows/mai-think-x-die-show-102/maithink-x-long-covid-mecfs-100 #MaiThinkX #mecfs #LongCovid #PostCovid #chronischkrank

Long Covid & ME/CFS – Blackbox der Pandemie

Die Pandemie ist für die meisten vorbei, aber für über Hunderttausende in Deutschland ist sie es nicht. Sie leiden unter den Spätfolgen ihrer Corona-Infektion.

ZDF